BC SUPPORT Unit

Please welcome Dr. Kerry Kuluski as our plenary speaker for Putting Patients First 2024! Kerry works with patients, families and care providers to co-design strategies and improve health-care experiences. She will share how three Ontario hospitals deliver high-quality care, with teams that use new approaches focused on patients and families. Learn more: https://bit.ly/4bfAu2f #PatientOrientedResearch #HealthResearch Trillium Health Partners Can-SOLVE CKD Network - Le réseau Can-SOLVE CKD CHILD-BRIGHT Network

Did you know that patient partners can help with data collection? They can carry out interviews, surveys or focus groups. With their lived experience, they can shape the way that information about their communities is gathered and conveyed. Like every journey, every research project is unique. Our road map tool guides you through ways that patient and public partners can meaningfully engage in a project, from start to finish. Explore the map: https://lnkd.in/gejuQmdS

🍂 Interested in learning more about the importance of safeguarding Indigenous data and knowledge when conducting health research? On November 14, join CHILD-BRIGHT's EDI-DI Co-Lead Marlyn Bennett for an illuminating fall webinar! Attendees will gain a deeper understanding of the pivotal role that data sovereignty plays in: 🔸empowering Indigenous communities  🔸preserving cultural heritage  🔸 ensuring that data is used in ways that respect Indigenous values and traditions Register today! 💻 https://lnkd.in/emWPs8y9

We transform how people’s experiences shape health research and health care. “People’s lived experiences have the power to transform health research,” said Monica Mamut, unit director, BC SUPPORT Unit. “That’s why we’re continuing to engage patients, partner on data and build learning communities. Over the next three years, we’ll create sustainable change to improve people’s health in BC.” Download our fact sheet and read about our impact: https://lnkd.in/gPYEh258 Michael Smith Health Research BC Canadian Institutes of Health Research | Instituts de recherche en santé du Canada

Dr. Davina Banner-Lukaris advances the practice of patient-oriented research. In this interview, Davina speaks on authentic engagement and how taking a leap of faith into patient-oriented research changed her life. She also shares the joy and heartbreak of engaging people with lived experience. “I think the beauty and depths of the relationships you build are amazing. That surprised me. You work so closely with people, you become colleagues, you become friends, you then become family.” “But there’s hard things that can come with that. With complex health conditions, people deteriorate, experience health crises. That’s the emotional reality of these partnerships. Patient partnerships humanize the research process. When a patient partner shares their experiences, we all become patients.” Davina Banner-Lukaris is a professor and interim associate vice president research operations at the University of Northern British Columbia (UNBC). Read more: https://bit.ly/3XW0sT6

Earlier this year, Canada’s Strategy for Patient-Oriented Research (SPOR), which is supported by many partners including the Canadian Institutes of Health Research, provincial health research funders and others, concluded an engagement process to refresh the Strategy. Today, the National Alliance of Provincial Health Research Organizations (NAPHRO) – a key partner of the SPOR program – and CIHR are inviting the community to read the early analytical reports summarizing the input received from community members on the seven refresh engagement themes on the NAPHRO website: https://lnkd.in/dhAaKviq

Explore our latest news and highlights: 1. Program available for Putting Patients First 2024 The conference will feature a keynote from Dr. Robert Reid, interactive sessions, a panel on diverse patient-oriented research experiences, and much more. We are at in-person capacity for the conference, with a waitlist for interested attendees. To watch the virtual livestream, no registration is needed. View the program: https://bit.ly/4bfAu2f 2. Dr. Nick Bansback shares the strengths and challenges of patient engagement in research “I’m somebody that gets excited about methods. But working with patients made me aware that I need to pursue the methods that are actually going to somehow improve a health outcome in a meaningful way.” Read the interview: https://bit.ly/4eynTc8 3. The urgency of improving health care with research In this interview, Dr. Robert Reid shares why Canada needs to rapidly use research evidence in health systems, so people can get the care they need. Learn more: https://bit.ly/4eKKFNE #PatientOrientedResearch #HealthResearch #Health #PPF24 Can-SOLVE CKD Network - Le réseau Can-SOLVE CKD CHILD-BRIGHT Network Canadian Institutes of Health Research | Instituts de recherche en santé du Canada Centre for Advancing Health Outcomes UBC School of Population and Public Health Michael Smith Health Research BC

🔔 Calling all POR trainees! Feedback is still needed to design better capacity-building activities 🎯. Share thoughts through this quick survey (just 27 easy questions, no keyboard required!). Input will shape the future of patient-oriented research 🙌. 👉 Take the survey now: https://bit.ly/4bnuwvk - 🔔 Pour la relève en RAP ! Des retours sont toujours nécessaires pour concevoir des activités de renforcement des capacités plus efficaces 🎯. Répondez à ce court sondage (27 questions faciles, sans clavier !) et contribuez à l'avenir de la recherche axée sur le patient 🙌. 👉 Participez maintenant : https://bit.ly/3RDGIBh

“Living rural and remote gives you a unique perspective on health,” says Paul Burgener, a patient partner and resident of Nelson, BC. “Your closest hospital could be hours away. Sometimes you can’t get any Wi-Fi or cell coverage. To reach the next town over, you might have to drive around a mountain or a lake.” In BC, rural and remote communities face unique challenges when it comes to health. It can also be difficult for patients to share their perspectives with the health system. That’s why the Patient Engagement in Research (PEiR) Committee exists. Part of the BC SUPPORT Unit, Interior Centre and the Interior Health research department, the PEiR Committee embeds patient perspectives in research and health care. Learn more: https://bit.ly/3ZPCmfb #HealthResearch #PatientEngagement #RuralHealth #RuralAndRemote Michael Smith Health Research BC Interior Health Authority

Join HEC and EMPaCT at WCH this fall for a webinar series on ‘how-to-do' equity-promoting patient engagement in the health and social system . Don't miss it! Sign up for the series today:  https://lnkd.in/gwFjJp9m Women's College Hospital | Ambreen Sayani