Sobi - Swedish Orphan Biovitrum AB (publ)

Celebrating Global Diversity Awareness Month. At Sobi, we believe that diversity goes beyond what meets the eye. This month, we are proud to shine a spotlight on neurodiversity - embracing different ways of thinking, learning, and working. Neurodiversity recognises the natural variations in brain function and behaviour, including conditions such as autism, ADHD, and dyslexia. It’s about understanding that neurological differences should be respected, just like any other human variation. Creating an inclusive workplace culture where everyone feels valued is essential, especially in today’s hybrid work environment. Through interactive workshops, we are integrating Diversity, Equity, and Inclusion (DEI) into our ways of working, promoting engagement and collaboration. We remain committed to fostering a culture that values and celebrates all forms of diversity - because by embracing our differences, we become stronger as a team. #Sobi #RareDiseases #InclusiveWorkplace #GlobalDiversityAwarenessMonth

Today, we unite to raise awareness for Paroxysmal Nocturnal Hemoglobinuria (PNH), a rare and life-threatening blood disorder. PNH affects the red blood cells, leading to severe symptoms and complications. This year, we are proud to highlight the Stories of Strength campaign, created in collaboration with people living with PNH. This campaign shines a light on the incredible resilience and courage of those facing this disease. Their stories continue to inspire us to advocate for better treatments and more support. Anna’s fictionalised story is inspired by a real person living with PNH. There were days when Anna felt a positive future was out of reach. However, she shared, “I was never alone. With the support of my doctors, friends, and family, I found an inner strength, and joy has returned to my life.” Visit https://lnkd.in/d2tVWfBh to hear Anna share her journey from diagnosis to treatment and how she reignited her strength and passions. Let’s come together to support those living with PNH and their families. Together, we can make a difference! #Sobi #RareDiseases #PNHAwareness2024 #Storiesofstrength

From brewing roots to global biopharmaceutical leadership – discover Sobi's legacy. Our history is a story of challenges overcome. From our Swedish origins, we have grown into an international biopharmaceutical leader, present in 30 countries and delivering medicines worldwide. Our rich heritage of collaborative expertise has empowered us to identify and develop innovative medicines consistently. We are dedicated to addressing significant unmet medical needs and transforming the lives of people living with rare and debilitating diseases. Explore our history and learn more about our journey. https://lnkd.in/dwcwATGv

Spotlight on Paroxysmal Nocturnal Haemoglobinuria, PNH, a rare blood disease that can have a profound impact on patients’ lives. It is caused by mutations in the cells responsible for producing red blood cells, which are essential for oxygen transport in the body. These mutations lead to the production of defective blood cells, triggering the immune system to attack and destroy them. This is the main cause of PNH symptoms and complications. This rare condition can affect anyone, regardless of age, race, or gender, yet no one is born with PNH. At Sobi, we are dedicated to raising awareness about rare diseases like PNH. Visit our website to learn more about the disease. https://lnkd.in/dA6JHXCm #Sobi #RareDiseases #PNH #PNHAwareness

This year’s European Haemophilia Consortium (EHC) Conference 2024 starts today! At Sobi, we’re committed to transforming the lives of people with rare and debilitating diseases and we are excited to participate once again at the EHC Conference 2024 in Sofia, Bulgaria. We look forward to participating in discussions on improving care for people living with haemophilia. You are invited to visit us at our booth! #Sobi #RareDiseases #EHC2024 #BleedingDisorders

We’re proud to celebrate 10 years of collaboration with Sanofi and the World Federation of Hemophilia Humanitarian Aid Program. Together, we’re working to bridge the gap in care in under-resourced regions and over the past decade we’ve had the privilege of touching countless lives around the globe. This year our team witnessed the impact of this initiative firsthand on a trip to India, where comprehensive haemophilia care has transformed the lives of many. Learn more about the journey and the inspiring stories of resilience from patients and caregivers: https://lnkd.in/dBTWgSx9 #Sobi #RareDiseases #TreatmentForAll #haemophilia

We have moved! Yesterday, Sobi officially opened the doors to our new global headquarters in the Fenix Sthlm building in Hagastaden, Stockholm, Sweden. Our new office places us in a thriving healthcare and life sciences environment, close to Sweden’s largest hospital and key research institutions. This move marks an important milestone for us, providing a modern, open workspace designed to foster collaboration and innovation as we continue our mission of transforming the lives of people with rare diseases. We are excited for the future and all that we will accomplish from our new headquarters! #Sobi #RareDiseases #Innovation 

We are proud to have signed EUCOPE’s open letter, "Building A Competitive Pharmaceutical Ecosystem For Small And Mid-Sized Innovative Companies." Together, we call on the leaders of the EU Institutions to create a supportive environment for innovative pharmaceutical companies. This will help the EU remain globally competitive, foster the development of novel therapies, and improve the lives of people living with rare diseases. Read the open letter: https://lnkd.in/eCeJk8U5 #Sobi #RareDiseases #InnovationEcosystem

We are proud to support Familial Mediterranean Fever (FMF) Day on 17 September. FMF is a rare autoinflammatory genetic disease that causes recurrent, painful episodes of fever, often accompanied by abdominal, chest, or joint pain. Though it is a lifelong condition that can affect individuals of any ethnic background, FMF is more common in those with Mediterranean ancestry. Autoinflammatory diseases, like FMF, remain under-recognised and are often difficult to diagnose due to their complexity and rarity. At Sobi, we stand with the FMF community and are committed to raising awareness about this challenging condition. Learn more about FMF and other autoinflammatory diseases. https://lnkd.in/dq-KyauF #Sobi #RareDiseases #FMF

Today, on World Lymphoma Awareness Day, we mark the 20th anniversary of this important day dedicated to raising awareness and supporting those affected by lymphoma. At Sobi, we believe in the power of honest conversations. This year’s theme, “Time for Some Honest Talk,” resonates deeply with us, emphasising the importance of open communication in navigating the emotional challenges of a lymphoma diagnosis. “The Right Words” Discussion Guide provides tools to help with difficult conversations, treatment decisions, and addressing fears and uncertainties. Access the guide https://lnkd.in/dMTyXPET Lymphoma includes over 80 subtypes, such as Diffuse Large B-cell Lymphoma (DLBCL), a type of cancer that affects white blood cells (B-cells), causing them to grow and multiply uncontrollably. Learn more from the Lymphoma Coalition https://lnkd.in/eRhusDr Let’s continue to raise awareness and show support for the lymphoma community. Together, we can make a difference. # Sobi #RareDiseases #WLAD2024 #LymphomaAwareness #TheRightWords #TalkingDLBCL