Project Sleep

📣 #RisingVoices speaker Tara O'Connor raised awareness of #narcolepsy with Harmony Biosciences during their monthly Lunch and Learn event! ⭐ Tara was diagnosed with narcolepsy type 2 at 22 years old but her symptoms started at the age of 2 years old. As a speaker with Project Sleep's Rising Voices program, Tara shares her long journey to diagnosis so she can help others learn about narcolepsy and hopefully help others get diagnosed sooner. 💙 Thank you, Tara, for raising such important awareness!

🔍 Take part in an online study investigating the impacts of the 2024 US election on sleep, stress, mood, and other markers of emotional and physical well-being! 📊 For the Fall of 2024, participants will be asked to complete one brief demographic survey, and then will receive daily surveys for two 2-week periods (Oct 7th - Oct 20th and Oct 28th - Nov 10th). ➡️ Learn more about the study, including benefits, risks and discomforts, and how confidentiality will be handled: https://lnkd.in/gJvdP7DN

Hollywood is one of the most influential public health messengers. This is why Project Sleep is thrilled to announce the Hollywood & Sleep Initiative, an important new partnership with Hollywood, Health & Society (HH&S), a program of the USC Annenberg Norman Lear Center. The two organizations will work with TV writers and producers to encourage storylines about sleep health and sleep disorders that are accurate, informative and entertaining. Learn more: https://lnkd.in/gviuDhDc

📢 Join a #SleepApneaSquad live broadcast in one week on Tuesday, Oct. 8, 2024 at 2pm ET via Project Sleep’s YouTube channel! Tune in as we discuss all the #sleepapnea testing options available at home and in sleep clinics. ✨ Emma Cooksey, Project Sleep's Sleep Apnea Program Manager, will be joined by Jody Martin, a Marine Corps Veteran and business owner living with #obstructivesleepapnea, and Andrea Ramberg, MS, CCSH, RPSGT, a past president of the BRPT and Clinical Director at Ensodata. ➡️ Learn more & sign up for #SleepApneaSquad e-updates: https://lnkd.in/gq9sMcn2

☎️ Who should contact Project Sleep's Sleep Helpline™? ⭐ Anyone looking for information about #sleep or #sleepdisorders is encouraged to reach out, including those uncertain if they might have a sleep-related condition, those diagnosed with a sleep disorder, loved ones, caregivers, healthcare providers, educators, and social workers. 💯 The Sleep Helpline can provide trusted information about sleep disorders, support on navigating daily living and the healthcare landscape, connections to AASM-certified sleep centers, patient advocacy organizations, and additional assistant programs and resources, + more! 📲 1-800-819-2043 📧 helpline@project-sleep.com 🌐 project-sleep.com/helpline

🧠 #RisingVoices speaker living with REM Sleep Behavior Disorder (RBD) Ray Merrell shared his story with American Brain Foundation to raise awareness about #RBD and its connection to neurodegenerative disease. Thank you, Ray, for raising such important awareness! ➡️ Read the blog about Ray: https://lnkd.in/gWSSpRx2 ➡️ Watch Ray's story on YouTube: https://lnkd.in/guBTg37Q ⭐ Ray Merrell was diagnosed with #REMSleepBehaviorDisorder (RBD) at age 54, after experiencing symptoms for 5 years. RBD causes patients to act out their dreams, and is the leading biomarker for developing a neurodegenerative condition such as Parkinson's Disease or Lewy Body Disorder later in life.

🔥 Matt Horsnell, #RisingVoices speaker living with #narcolepsy with #cataplexy, has been BUSY blazing trails in the #patientadvocacy space this September! 💯 On Sept. 12, Matt was the FIRST patient advocate to be featured as a panelist at The Society of Behavioral Sleep Medicine Conference. In addition, Matt was AGAIN the first patient advocate to be featured on Sleep Research Society's podcast! 💙 Thank you, Matt, for working to break down barriers in the #sleep space and accomplishing these impressive "firsts!" We are so proud and so grateful for you!

While I’m having major FOMO not to be in Seville for European Sleep Research Society meeting, Lindsay Scola and I kicked off what I believe is one of the most important initiatives in the sleep awareness space to date today, Project Sleep’s new collaboration with Hollywood, Health & Society to bring accurate sleep disorder portrayals to television shows! We met at the HH&S headquarters at USC’s Norman Lear Center, I shared my story and then our analysis of narcolepsy portrayals in film and TV to date. The best is yet to come! https://lnkd.in/gmR8yM7Q

🪫 Is your body battery always on low? Before Kristen Cascio got diagnosed and treated for #sleepapnea, she wondered why things like taking power naps or drinking caffeine didn't help with her sleepiness. 🤔 Does this sound like you? You could be living with an undiagnosed #sleepdisorder! Contact Project Sleep's FREE Sleep Helpline™ for trusted info & advice to help you on the next step of your #sleep journey. 📲 1-800-819-2043 📧 helpline@project-sleep.com 🌐 project-sleep.com/helpline

✨ THANK YOU #WorldNarcolepsyDay2024! ✨ 💫 Every year we are SO impressed with the incredible capacity of this community. Your dedication, passion, and positivity truly inspire us and advances our hopes for a brighter future for those living with #narcolepsy. 🌌 This #WorldNarcolepsyDay, we set out to take up SPACE for narcolepsy awareness and broadcast our voices across the galaxy. From Poland to Brazil to Washington DC and beyond, your smiling faces, favorite nap spots, best days and worst days, and candid stories filled both our feed and our hearts. 💞 We are eternally grateful for your support in raising critical awareness for narcolepsy. It is all of you who make this day so special! 💯 We hope this World Narcolepsy Day gave you the opportunity to make new friends, reconnect with old ones, and educate loved ones about the chronic neurological condition that affects 3 million people worldwide. And if you didn't, it's never too late! 🌎 To see more amazing pictures from this incredible community, search the hashtag #WorldNarcolepsyDay. We encourage you to comment, like, and share to show your support!