Wake Up Narcolepsy

The Vibrance-2 Study is researching an investigational oral study drug for the potential treatment of excessive daytime sleepiness symptoms. Adults 18-70 years of age with narcolepsy type 2 are invited to learn more about this important sleep disorder research. https://lnkd.in/epqRNNvs

Announcing WUN's September Brown Bag Webinar: Describing Narcolepsy Symptoms by Debra Stultz, MD! ⁠ 📣Join us on September 12th at 2pm ET to learn ways to educate others about Narcolepsy, including symptoms like #cataplexy and #excessivedaytimesleepiness, to help them understand the struggle. Even a brief discussion on the effects of symptoms on sex will be provided. ⁠ Dr. Stultz is a physician, nationally known speaker, and author on topics such as #Narcolepsy, #Insomnia, Treatment-Resistant Depression, Diagnosing #SleepDisorders, Spravato, and Transcranial Magnetic Stimulation (TMS). ⁠ 🙋As always, be sure to bring your questions for this no-cost opportunity to "ask the experts!"⁠ ⁠ Pre-registration is required: https://lnkd.in/eDs5PivN ⁠ Thank you to our 2024 sponsors: Jazz Pharmaceuticals, Avadel Pharmaceuticals PLC, Harmony Biosciences, Takeda and Paladin Pharma!⁠

Our 2nd #StepUpForSleep event is coming up soon in #Colorado! 👟Join us at Lions Park on September 28th for a fundraising walk and an opportunity to hear from people living with #Narcolepsy. Refreshments will be served. ⁠ 📲Learn more, donate and register for the #ColoradoStepUp: https://lnkd.in/etWUZpS9 ⁠ 🥰Thank you to our volunteers for making these events possible! ⁠ ⁠ Thank you also to our sponsors: Jazz Pharmaceuticals & Takeda!⁠

Join us tonight (or any Monday night) at 8:15pm EDT for our Parents/Loved Ones of People with #Narcolepsy Support Group!⁠ ⁠ 📣The group, hosted by Tracy Veit, is a wonderful place to discuss your challenges and celebrate your successes with people who understand. ⁠ You're not alone in navigating this disorder. We have something for everyone, whether you're someone with Narcolepsy or Idiopathic Hypersomnia, or a loved one!⁠ Register now and check out the full schedule: https://lnkd.in/dMzkYxTa ⁠ ❤️Thank you to our AMAZING support group facilitators!⁠ ⁠ These support groups are offered at no-cost thanks to our sponsors: Jazz Pharmaceuticals, Avadel Pharmaceuticals PLC, Harmony Biosciences & Takeda!⁠ ⁠ Groups are subject to change each week.⁠

Happy #NationalNonprofitDay from Wake Up Narcolepsy (WUN)!⁠ ⁠ 🤔If you're unfamiliar with our organization, let us tell you a bit about what we do and why we do it!⁠ ⁠ Wake Up Narcolepsy is a 501(c)(3) #nonprofit organization dedicated to driving #Narcolepsy awareness, education and research towards improved treatments and a cure. To accomplish our mission, we provide funding to accelerate a cure for Narcolepsy, provide supportive materials for those affected by Narcolepsy, work to decrease the delay in diagnosis and more!⁠ ⁠ 📣Our programs are no-cost and are open to the Narcolepsy and Idiopathic Hypersomnia community. We're here to answer your questions, direct you to the appropriate resources and connect you with others who understand what you're going through! ⁠ ⁠ Since its founding in 2008, WUN has become a national leader for Narcolepsy advocacy, donating over $1.3 million to research efforts🔬 ⁠ ⁠ To learn more about WUN and how you can get involved, please visit https://lnkd.in/gcuk5_cc ⁠ 🥰Thank you to everyone who has been involved with our organization and supports our mission. We appreciate you!⁠

Join us in September for WORLDWIDE Step Up For Sleep, a global campaign🌎️ to raise awareness and vital funds around #WorldNarcolepsyDay, which takes place on September 22, 2024! From September 1st to 30th, join the movement by participating in weekly challenges for a chance to win prizes🏆️ Each week, we’ll introduce new activities and rewards to boost physical activity as well as raise #Narcolepsy awareness and funds. 📲REGISTER NOW, order t-shirts, donate and more: https://lnkd.in/euHC6YEw Stay tuned for more details and get ready to #WorldwideStepUp this September! Thank you to our 2024 awareness sponsors: Jazz Pharmaceuticals, Avadel Pharmaceuticals PLC, Harmony Biosciences, Axsome Therapeutics, Inc. and Centessa Pharmaceuticals!

🏁The Night At The Races WUN Town Hall took place on August 3rd, where Vincent Arthur, a driver living with #Narcolepsy, had his first race at Hickory Motor Speedway! ⁠ ⁠ Joining him at the track was Blake Grisco, a racing enthusiast who is also the son of a WUN board member and brother to a person living with Narcolepsy!⁠ ⁠ Despite having to deal with his radio coming unplugged, leaving Vincent to drive blind without his spotter, and a miscommunication that led to starting at the rear of the field again, he finished in position 8🥳 His car featured WUN on the bumper!⁠ ⁠ 📲Read the full recap and learn more about virtual races you can tune into on Tuesday nights: https://lnkd.in/eDMTCraX ⁠ Thank you to Vincent for the amazing work you are doing to raise awareness and for letting us be a part of your journey, as well as to Blake for representing WUN! ⁠ ⁠ Thank you to our WUN Town Hall sponsors: Jazz Pharmaceuticals & Takeda!⁠

🤩Announcing our Alberta Night Walk #WUNTownHall! Join us at Holy Trinity School on September 21st at 6:30pm MT for a community event where you can learn about Narcolepsy and help raise awareness! There will be an educational session followed by a glow walk🌟 Refreshments will be served. ⁠ 📲RSVP: https://lnkd.in/eEbbx_iw Thank you to our volunteers for making these events possible! ⁠ Thank you also to our sponsors: Paladin Pharma . . . #WakeUpNarcolepsy #Narcolepsy

✨️On September 20th, our inaugural Shadows to Light Gala will open with the "Wake Up to a Brighter Future with Narcolepsy Exclusive Educational Forum." Some of the nation's most recognized Key Opinion Leaders will examine and discuss the current state of #Narcolepsy treatment and diagnosis, as well as opportunities for growth. Bringing experts in the field together in this capacity is pivotal in the work WUN is doing to advance Narcolepsy research. The content will be developed to reach a broad audience. We appreciate our Diamond Gala Educational Partners: Avadel Pharmaceuticals PLC, Jazz Pharmaceuticals and FFF Enterprises & our Gold Gala Educational Partners: Harmony Biosciences, who make this possible. . . . #WakeUpNarcolepsyNYC #ShadowsToLightGala #WakeUpNarcolepsy

Join us for another 6-week session of our #Pregnancy & #Parenting with #Narcolepsy Support Group!⁠ ⁠ 📣Meetings are now held on THURSDAYS at 8pm ET and start on August 29th. Hear from our expert facilitators who have Narcolepsy and have experienced pregnancy, childbirth, breast feeding and raising children.⁠ ⁠ We have groups for everyone and want to make sure no one feels alone in navigating their disorder. Individuals with Idiopathic Hypersomnia are also welcome!⁠ Sign up today: https://lnkd.in/dMzkYxTa ⁠ ❤️Thank you to our amazing volunteer facilitators who make these groups possible by dedicating their time! ⁠ ⁠ These support groups are offered at no-cost thanks to our 2024 sponsors: Jazz Pharmaceuticals, Avadel Pharmaceuticals PLC, Harmony Biosciences & Takeda! ⁠