Morning network. A pretty reflective morning after reading of Rob Burrow CBE death yesterday and his five year journey with Motor Neurone Disease.
Why reflective? As anyone who has ever been a carer will attest: waking up without a day of occupation, the sleepless nights from hearing a life-assisting machine bleep, or alarm; of sweating through Covid that the dressings, drugs, or consummables might not arrive, or that the one visitor (who you are desperate for as you’re so isolated) could be the one that brings the virus to your door. To the five years of extreme fatigue for being an invisible carer, and the turning of your family home into a hospital, to the awful realisation this morning that you have ‘nothing to do’. No feed changeovers, no laundry, no appointments, no bag emptying, no re-ordering of stock, no wondering if this day will be the last.
It is invisibly exhausting and yet the absence of that occupation is full of emotion too big to describe.
So this morning, Lindsey Burrow and your incredible three children. I see you, I walk with you through the burden of releasing your grief and fatigue, and we all carry you in our thoughts today.
To carers everywhere: we see you too. The quiet compassion and resilience teaches all of us (who profess to be knowledgeable on such matters) that dignity and courage start at home.
RIP Rob Burrow CBE, thank you for reminding us all of the strength of the carers.
To those in healthcare, this is why I do it. If one moment of my work made any patient journey smoother, pain free or less burdensome for those doing the caring, then I have truly made a difference.
#carers #compassion #MND #motorneuronedisease #resilience #respect #courage #dignity #NHS #family #integratedurgentcare
Long Term Care Insurance Specialist | Independent LTC Broker Representing All Carriers & Plan Designs | Natl. Ranked
7moPlan for surviving spouses well being w a long term care policy. Esp is client doesn’t own one as resources will be redirected.