National Hispanic Heritage Month is almost here and I am thrilled to invite all Donation and Transplant professionals to join us on September 19th at 2:00pm EST, for this amazing and very informative webinar we have put together as part of the Organ Donation & Transplantation Alliance (The Alliance) Diversity, Equity, Inclusion and Belonging Conversation series: “Advancing Equity to save more lives in the Latino Community: Case Studies”. REGISTER TODAY AT https://lnkd.in/gRHCfRbs In the United States, the Latino community, especially those who are undocumented, face significant barriers accessing healthcare. In this conversation, we will establish a foundational understanding of the Hispanic culture, values, and beliefs in relation to donation and transplantation. Our specialized panel of Latino leaders/Family Services experts in the field will review relevant donor case studies, from different OPO regions, in order to identify common barriers and challenges when approaching Hispanic families for donation in a hospital setting. Utilizing a culturally sensitive approach, our panelists will share best practices, tools and resources to overcome these barriers, in order to increase authorization for donation in the Latino community, serving them more equitably and saving more lives. (Find more info in the flyer attached)* Los esperamos!!! 🙌🏼💙💚 #donevidanewengland #thealliance #neds #organdonation #transplantation #diversityequityinclusionandbelonging #DEI #deib #hispanicheritagemonth #latinoleaders #savinglives image0.jpeg
Dr.Salvador Guerrero’s Post
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I'm so excited to share my first post with all of you about something I'm truly passionate about—organ donation research! A huge shoutout to my coach, Anita Adefuye, MPA, for inspiring me to step out of my comfort zone and share my research and insights on this fascinating topic. Currently, I'm working on my Ph.D. research under the exceptional guidance of my supervisor, Prof. Justin Longo, at the Johnson Shoyama Graduate School of Public Policy. Together, we're exploring how the presumed consent policy can impact organ donation rates in a study titled "Public Policy Morality Issues and Behavioral Nudges: How the Policy System Talks About Presumed Consent Post-Mortem Organ Donations." Let's dive into the amazing field of organ transplantation! From the remarkable advancements in modern medicine to how it benefits people with conditions like diabetes, organ failure, and heart disease, organ transplants truly change lives. They not only enhance the quality of life but also have a significant impact on public health. Despite these achievements, there's a global shortage of organs for transplants, with less than 10% of the demand being met. This scarcity underscores the need for more discussions and actions to ensure that everyone in need can receive the life-saving organs they require. Let's work together to raise awareness about organ donation! By spreading the message through social media, events, and advocacy, we can save lives. Your support can help bridge the gap between organ supply and demand, providing hope to those in need. Let's join forces to inspire positive change! #OrganDonation #ResearchJourney #NudgeForChange #SaveLives #PublicHealth #MakeADifference"
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As Americans, this is a day when we come together to celebrate our independence and express our patriotism. I hope we take a moment to remember that the freedoms we enjoy are not free, and we pause to honor the sacrifices of those who have fought for the freedom we hold so dear. I also hope we stop for a minute today to pray for those in countries around the globe we don’t know freedom. In the United States, most children with cancer and life-threatening blood disorders now survive their diseases. Through research and treatment, St. Jude Children’s Research Hospital has helped make that progress possible. But the outlook can be far less optimistic for children who live in other parts of the globe. Worldwide, more than 90% of children with cancer live in low and middle-income countries. Too many of those children lack access to adequate diagnosis and treatment. Most of them will die from their diseases, but that statistic is about to change. St. Jude has launched an ambitious initiative to improve access to care for children with cancer and life-threatening blood diseases in every corner of the world. Led by the Department of Global Pediatric Medicine, St. Jude Global will create a network of interactive institutions that will form a global alliance focused on reducing this gap worldwide. The mission of St. Jude Global is to improve the survival rates of children with cancer and other catastrophic diseases worldwide through the sharing of knowledge, technology, and organizational skills. I hope you saw the news about the cancer patients and family members from Gaza who were evacuated last week to our alliance partners. Dr. Carlos Rodriguez-Galindo of St. Jude was interviewed on NBC Nightly News about the effort. Working with the State Department and White House, the World Health Organization and governments of the region, ALSAC and St. Jude were able to help get this done – just as we have in other crisis zones recently like Syria and Ukraine. It’s part of what Danny Thomas meant when he said, “No child should die in the dawn of life – no child, anywhere.” #4thofjuly #independence #freedom #cancer #curecancer #childhoodcancer #childhood cancer awareness #fightcancer #fightcancertogether #philanthropy #fightchildhoodcancer #stjudegeorgia #stjudega #stjudechildrensresearchhospital #donate
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Midwest Transplant Network celebrates the exceptional work of our friends at Gift of Life Michigan to reduce racial disparities in organ donation through education and advocacy. Black patients make up a disproportionately high percentage of Americans waiting for life-saving organ transplants, but a low percentage of registered donors due to longstanding inequities. Addressing this requires thoughtful, long-term public outreach that does not happen overnight, as described by Gift of Life Michigan CEO Dorrie Dils: “It's very, very grassroots. There is no ad campaign that's going to convince people. It's talking to people […] and getting their questions answered, hearing their stories. That happens one person at a time — in church basements, schools, at community events. Anywhere we can go where we can talk to people about organ and tissue donation, we attempt to be there." Thanks to their dedication, the percentage of diverse organ donors in Michigan grew from 23.9% in 2016 to 49.5% in 2023. Learn more in this Detroit Free Press article: https://lnkd.in/e2gxJK3v #GiveHopeShareLife
There’s a racial disparity among Michigan’s organ donors. Fixing it would save lives.
freep.com
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Dr. Laila Woc-Colburn with Power2Save shares her thoughts on Hispanic Heritage Month: "When reflecting on Hispanic Heritage Month in the context of advocating for donation and transplantation, it holds significant importance in raising awareness within the Hispanic community. Hispanic Heritage Month provides a platform to address the pressing issues surrounding organ donation and transplantation in this community. Firstly, it is crucial to recognize that there are approximately 22,000 Hispanic patients on the organ transplant waiting list in the United States. This staggering number highlights the urgent need for action and emphasizes the importance of increasing organ donation rates among Hispanics. One of the key challenges we face is the low donation rate among Hispanics. This disparity can be attributed, in part, to the persistence of various myths surrounding donation. These misconceptions act as significant barriers, preventing many Hispanics from registering as donors. It is important to note that the cultural background and heritage of the Hispanic community play a crucial role in shaping attitudes toward organ donation. Hispanic Heritage Month provides a valuable opportunity to advocate for donation and transplantation within the Hispanic community. By increasing awareness, dispelling myths, being culturally aware, and prioritizing effective communication, we can work towards saving more lives and reducing the disparity between the number of Hispanic patients awaiting organ transplants and the number of Hispanic donors." #HispanicHeritageMonth #Power2Save #KidneyTransplant #CKD #TransplantFirst #KidneyDisease #EndStageKidneyDisease #KidneyHealth #LivingDonor #OrganDonation #HopewellHealth #KidneyWarrior #KidneyStrong #HealthyKidneys
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🎗️ "No Child Should Die": St. Jude's Global Fight Against Childhood Cancer 🎗️ St. Jude Children's Research Hospital in Memphis, Tennessee, is leading a global initiative to combat childhood cancer, especially in low- and middle-income countries. Here's why this mission is so crucial: 🔹 Staggering Stats: In affluent nations, 8 out of 10 children survive cancer. However, in low-income countries, only 3 out of 10 survive, and an estimated 50% never even get diagnosed. 🔹 Global Partnership: St. Jude is collaborating with the World Health Organization to train doctors, support hospitals, and invest $200 million to provide cancer medicines to 120,000 children by 2027. 🔹 Celebrity Support: Jennifer Aniston, Jim Carrey, Sharon Stone, and John Travolta are among the celebrities who have contributed to St. Jude, which raised $2 billion in donations in 2021 alone. 🔹 Innovative Solutions: The program is exploring blockchain technology to track medicine supplies and ensure they reach the patients who need them. 🔹 Holistic Approach: The initiative is not just about delivering medicines but also focuses on the safe handling, storing, and even discarding of chemotherapy drugs. 🔹 Learning and Sharing: St. Jude believes that partnering with low- and middle-income countries will offer valuable insights into the delivery of care and could potentially impact kids everywhere. 🔹 A Lifelong Mission: Dr. James Downing, the hospital's CEO, believes this initiative could be the most important work he ever does, with the potential to save millions of lives. #ChildhoodCancer #StJude #GlobalHealth #HealthcareNews #Centerinsuranceandfinancialservices #CIFS #Medicare #Lifeinsurance #Healthinsurance #NMO #Aetna #Cigna #Humana #UHC #Devoted #Anthem #Wellcare #Joinus #Teamwork #Sales #Networking #Smallbusiness #Life #Healthylifestyle
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Head - Transfusion Medicine | National Award for outstanding work in Blood donation | Healthcare blogging | Leadership | thirdthinker.com
Why finding the right bone marrow donor is so rare Think of it like searching for your perfect match, only it's way more complicated than swiping on dating apps! Medical Matchmaking: Our cells have special markers called HLAs. For a bone marrow transplant, we need a donor with super similar markers, or things get messy. 😬 Family Ties: Your best bet's usually a sibling, but even then, it's only a 25% chance of being a close match. Ethnicity Matters: Certain markers are more common in specific ethnic groups. A diverse donor pool is HUGE for increasing someone's odds. The Needle in the Haystack: Massive registries exist, but finding the right donor can still be tough, especially for those from underrepresented ethnic groups. But there's hope! Here's how to help: Join a registry: If you're healthy & 18-40, signing up might make you someone's lifesaver. Organizations like Be The Match make it easy. Spread the word: The more people know about bone marrow donation, the better! Share posts, encourage others to sign up. One match can change everything. ❤️ #bethematch #bonemarrowdonation #dkms #datri DATRI Blood Stem Cell Donors RegistryDKMS BMST Foundation India https://wix.to/7bqVHjl #newblogpost
Why is it difficult to find a match for Bone marrow donor?
thirdthinker.com
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Colorectal cancer screening saves lives. But not everyone can afford to get screened on time. Between travel, taking off work, childcare, and even the cost of screening, we understand how hard it can be to get screened. That's why 40% of our grantmaking goes to getting communities screened. When you participate in Get Your Rear in Gear, you're providing funding for your community to get screened! Click here to read more about our screening grants: https://lnkd.in/gExSdgTD
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At Marrow Mates, we believe that every patient in need deserves a fighting chance for a life-saving bone marrow transplant. However, we can't ignore the fact that there's a significant lack of diversity in bone marrow registries worldwide. 🌍 Bone marrow donors should reflect the rich tapestry of our global community, but currently, we see underrepresentation from various ethnic backgrounds. This shortage can be a barrier to finding a compatible match for patients from diverse racial and ethnic groups. We're committed to changing this narrative! Here's what we're doing and how you can help: Raising Awareness: By talking about the importance of diversity in bone marrow registries, we can encourage more people from underrepresented communities to join and make a difference. Community Outreach: We're actively engaging with diverse communities, partnering with organizations, and holding outreach events to educate and recruit potential donors. Advocacy: We support policies and initiatives that promote diversity in bone marrow registries, to give every patient a fighting chance. You: YOU can be a part of the solution! If you haven't already, consider registering as a bone marrow donor. Encourage friends and family from diverse backgrounds to do the same. Let's work together to ensure that every patient, regardless of their background, has a better chance at finding their perfect match. Together, we can save lives and promote diversity in bone marrow registries. 💪💙 #DiversityMatters #MarrowMates #BoneMarrowRegistry
Marrow Mates Diversity in the International Registries
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If you’re new here, we’d like to introduce ourselves and tell you a little about us! Here at The National Children’s Cancer Society (NCCS), we believe no family should go through childhood cancer alone. The NCCS focuses on the things that families need NOW, while their child is in treatment: • Travel-related expenses associated with treatment like gas, flights, and hotels. Because getting to their treatment is a priority. We spend about $62,000 each month to cover these costs for families! • Emergency financial assistance during long in-patient visits. This can assist with mortgage or rent, utilities, food, or any other household need. But our support goes even further: • Free publications and information during and after treatment. • College scholarships to childhood cancer survivors. • Worldwide support for childhood cancer patients: The Michele Hertlein Global Outreach Program partners with pharmaceutical companies to distribute donated cancer treatment drugs and medical supplies around the world. PLEASE – Hit “share” or comment below to help us spread the word so others can learn about the work we do. Making this post more visible could help us reach more families who need our support. Learn more on our website at theNCCS.org. #childhoodcancer #thenccs
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Australian Organ & Tissue Donation & Transplantation Authority - It's been 57 days since 2023 ended. During this time, Australia has been eagerly monitoring the declining trends in Organ Donation Consent rates. In 2018, 64% of Australian families granted the necessary consent for their loved ones to become Organ Donor Heroes. Before the emergence of COVID-19 in 2019, consent rates had already dropped by more than 2% to 61.7%, and in 2020, they fell further to just 58%. Then, Covid struck, and by 2022, the national rate had plummeted to only 53.9%. Despite the pandemic having ended some time ago, the OTA still attributes their failing strategy to the Australian people and the pandemic. Throughout this period, the one consistent factor besides declining rates has been the leadership of the OTA and the CEO's tenure. If the numbers indicate that fewer than 60% of Australians consented to organ donation, or if the Donations per million people is less than 20dpmp, or even if the registrations of Australians on the organ donation register did not increase by 10% compared to the previous year, the CEO should be called to step down! Anne Ruston Gerardine (Ged) Kearney Mark Butler MP Anthony Albanese The Hon. Peter Dutton MP #organdonation #transplant #awareness #australia #accountability
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