Rob McBride’s Post

Hi all, I know linked in is for professional conversations but I’m breaking protocol here with an ask for some help.🙏🏻🙏🏻 As you all most likely know, we’ve been through a pretty rough few months with Fletcher; however you may not know that my eldest son Levi has an ongoing struggle with a super rare disease - VHL (Von Hippel Lindau) a rare genetic cancer. Since being diagnosed in 2020, they have discovered multiple tumours in Levi’s brain, spine, retinas, kidneys and pancreas. He has lost sight in one of his eyes and survived brain surgery in 2021. It’s been a lot. But there is HOPE for him and others with VHL. A drug called Belzutifan, which reduces VHL tumour growth, is now here - the only problem is that it costs $12,000 a month and is a medication you need to take for life. Belzutifan has just gone up for consideration to go on the Pharmaceutical Benefits Scheme (PBS). If/when it does it will be $7 a month. Yep, $7 to potentially save someone’s life and help in avoiding countless surgeries over a life time. VHL sufferers cannot wait for the government to deliberate on this while their tumours continue to grow. For some, another surgery isn't an option. They are running out of time. Please sign our petition to get Belzutifan on the PBS. It will take less than a minute. ( and please ensure you click the link in the email that is sent back- no signing is valid unless this email is verified) Thanks so much in advance for your support, we need all the support, awareness and media coverage https://lnkd.in/gvuHKFtk Closing date for signatures: 17 April 2024 10:59 PM

TARGETED SKIN CHECK PETITION TO PARLIAMENT Show your support for a targeted national skin check program. 🌞In the last two decades since a formal skin cancer screening model was proposed – and deemed too expensive, advances in technology, talent and treatment pathways have significantly improved. Meaning a more efficient and effective model is now a viable option for Government investment. 🔍Economic forecasts from this new model suggest a 30/1 return in savings to the healthcare system, not to mention the thousands of lives saved every year from a co-ordinated pop-up skin check program, targeting high risk communities (particularly in remote / regional Australia). 🏁Non-profit charity Skin Check Champions has worked on a viable model for this program for over a decade, checking more than 10,000 Australian’s and gathering data and improving strategies to inform such an initiative. Their average rate of detection is up around 1 in 25. Which is far higher than any other model previously proposed. 💪The key is technology, talent and targeting. Together, with Federal and State Departments, it’s time Australia backs a ‘Targeted National Skin Check Program’ and start leading the world in the early detection of skin cancer, rather than skin cancer deaths. ✍️You can help make skin cancer history by taking 30 seconds to sign this petition.

#LungCancer is one of the most expensive cancers when diagnosed at a late stage, costing tens of thousands more than early-stage treatment. In a recent New York Times letter to the editor, our #CEO, Laurie Ambrose, highlighted the crucial role of #EarlyDetection through lung cancer screening. As Laurie stated, "We need to invest more, not less, to find the disease early when it can be managed and cured...Screening saves lives." Read more about the importance of early detection and our ongoing work to promote lung cancer screening 👉🏻 https://nyti.ms/3SZ6P6j #LungCancerAwareness

During this session of the 2023 Joint HPVRT/NRTCC National Meeting, we learned new information relative to emerging, on-the-horizon topics, including the elimination of HPV cancers, self-sampling for cervical cancer screening and one-dose implications for HPV vaccination.

The Sovereign Monarchs of the Pitcairns Islands are undergoing needed therapies for their bodily ailments. Let us pray for their complete healing and restoration. The Monarchy should revert back to a non stream-lined monarchy, to its previous expanded Monarchy, because two or four or even six Royals simply can not bear the heavy State burdens and Constitutional duties of the Monarchy. As we have seen through the years, the British Monarchy is not really just a municipal or local national monarchy, that is, the Sovereign Monarch of one country or nation only, but it is in fact an international Monarchy, a global and world Monarchy, the Monarchy of many States and Nations in the world. That is because it is actually the Sovereign Monarch of 15 nations and countries, such as Canada, Australia, New Zealand, and the Pitcairns Islands, aside from the UK, and among many other States and Nations, not to mention being the Royal Head of the Commonwealth of Nations, too, which is comprised of 60 more or less important sovereign Nations and Countries all over the World. As such, the Monarchy should bring back the expanded and non stream-lined Monarchy of the previous years and decades, and bring back to full Royal duties and full Royal privileges: Princess Beatrice and Princess Eugenie, the children of the Princess Royal, and the children of Prince Edward, as well as the children of Princess Margaret, in order to help HM The King and the Queen, and the Waleses, perform their Royal duties and functions in these trying times of bodily ailments. The World and Humanity need the British Monarchy, because the Monarchy gives the World and its peoples nobility, stability, history, calmness, beauty, dignity, elegance, solemnity, richness, tradition, serenity, and stateliness that no other national or global institution can ever provide or imitate. 🇵🇭🇵🇳🇬🇧 https://lnkd.in/gvrHzURu

This is a thorough and fully validated discussion of the development of the SARS CoV-2 virus, and also covers the gain-in-function issues, as well as the spike protein impact found in the mRNA vaccines. Please upload and share this before it disappears.

Posting this on humanitarian basis so it can helpful

The Ontario Institute for Cancer Research (OICR) is working to better understand tumor biology and improve cancer care through the use of genomics. Their partner at Princess Margaret Cancer Centre, relies on OICR and whole-genome and transcriptome data to guide treatment and monitor disease progression as part of clinical trials. At the core of this, is the sequencing performed on the NovaSeq™ X Plus. Learn how OICR is using the NovaSeq™ X Plus to accelerate projects, like those with Dr. Stephanie Lheureux at Princess Margaret. The economics, speed, and throughput are ultimately aiding both institutions in reaching their organizational goals and missions. Change the world with the NovaSeq X Series: https://lnkd.in/dVvXHDA3 https://lnkd.in/djDsrtkJ

Interesting article on the BBC today

We are shaped by the journeys we make. Reflecting back on one of these. Hope we find peace and purpose in the journeys we make. https://lnkd.in/e7tMm56f