The Brain Tumour Charity’s Post

Did you know that fundraising isn’t the only way you can do your bit to improve the lives of those affected by a brain tumour diagnosis? You can help us to make sure that the brain tumour community can easily access the information they need when coming to our website. If you can, spare just 10 minutes of your day to complete this simple sorting exercise, and help ensure that our website is accessible for anyone who visits: https://bit.ly/3STDT0s #LivingLongerandBetter #BrainTumours #BrainTumourInformation

🌟 Save the Date: Sarcoma Exchange on October 14th and 15th! Mark your calendars for an event that's about to make waves in the world of sarcoma. The Sarcoma Exchange is gearing up to take place on October 14th and 15th – two days that promise to enlighten, connect, and empower. What is the Sarcoma Exchange, you ask? It's a dynamic platform where patients, caregivers, medical experts, and researchers converge to share insights, experiences, and support related to sarcoma. Whether you're seeking the latest medical breakthroughs, personal stories of resilience, or a community that truly understands, this event has something for you. Here's your call to action: Consider making a difference in the lives of sarcoma warriors by participating in the Sarcoma Exchange. Your presence, your voice, and your support can pave the way for brighter futures. And if you're inclined to take it a step further, think about contributing through donations. Every dollar invested is a step towards progress, research, and hope. Let's join forces on October 14th and 15th for an event that matters. Be a part of the Sarcoma Exchange – your actions can make a world of difference. #SarcomaExchange #SaveTheDate #MakeAnImpact #DonateNow #sarcomaawareness When: October 14 & 15th Location: Virtual Time: TBA Click here to learn more: https://lnkd.in/gpzmYAcC Follow the Sarcoma Alliance TODAY!

Our webinar with JustGiving and Brain Tumour Research is tomorrow! ⏰ Don't miss out on learning how Brain Tumour Research see proven results from the GivePanel x JustGiving integration. Hear from industry experts, get a sneak peek at what's to come and find out why we think the age of using just Facebook fundraisers for events is over. 🔥 ⏰ Tomorrow, 10am BST 🎟️ https://bit.ly/4e64Xld #Webinar #CharityFundraising #SocialFirstFundraising #FundraisingEvents

Would you like to find out more about our involvement in leukodystrophy research? 🔬👨🔬 We understand that research is a significant priority and as a charity we: 🔵 Link leukodystrophy patient, clinical and research communities 🔵 Provide direct support for research 🔵 Help our patient community understand research Visit our 'Research and Alex TLC' page to find out more: https://lnkd.in/ej3q2fUn #alextlc #leukodystrophy #helptocope #helptohope

Would you like to find out more about our involvement in leukodystrophy research? 🔬👨🔬 We understand that research is a significant priority and as a charity we: 🔵 Link leukodystrophy patient, clinical and research communities 🔵 Provide direct support for research 🔵 Help our patient community understand research Visit our 'Research and Alex TLC' page to find out more: https://lnkd.in/ej3q2fUn #alextlc #leukodystrophy #helptocope #helptohope

Why donate to brain research? Investing in brain research contributes to our collective knowledge and understanding of the brain's complexities and helps fund studies that lead to breakthroughs in treatments and therapies. When you give today, you're improving the quality of life of individuals with brain diseases and disorders, their families, and caregivers. #GiveHope this holiday season. Follow the link below to #donate. https://lnkd.in/gVW52Sku

𝐄𝐯𝐞𝐫 𝐰𝐨𝐧𝐝𝐞𝐫𝐞𝐝 𝐰𝐡𝐞𝐫𝐞 𝐲𝐨𝐮𝐫 𝐝𝐨𝐧𝐚𝐭𝐢𝐨𝐧𝐬 𝐠𝐨 𝐚𝐟𝐭𝐞𝐫 𝐩𝐮𝐫𝐜𝐡𝐚𝐬𝐢𝐧𝐠 𝐚 𝐁𝐢𝐠 𝐅𝐫𝐞𝐞𝐳𝐞 𝐛𝐞𝐚𝐧𝐢𝐞? Discover the journey your money goes on from the supermarket to the lab. FightMND beanies are more than just a fashion statement, they are a vital funding source for Motor Neuron Disease Research. You can learn more about how your contributions are making an impact by clicking the link below. https://lnkd.in/gcmqEVic

Individuals with #ZTTK syndrome are among the rarest of the rare. There are less than 300 known individuals with ZTTK in the entire world. Due to strict regulations and funding challenges, academic medical research is often a long, slow process. And because ZTTK is so rare it is difficult to attract the attention of medical researchers. The primary researcher who discovered ZTTK syndrome after many years of studying the SON gene remains committed to her medical research and works closely with our foundation. We are immensely grateful for her knowledge, expertise, commitment and friendship. Currently the only treatment options for individuals with ZTTK syndrome are symptomatic support: medications or surgeries for seizures, feeding tubes for poor growth, IV infusions for immune deficiency, therapies for developmental delays, etc. Late last year ZTTK SON-Shine Foundation began exploring the option for potential rare drug development specific to ZTTK syndrome through translational science. This avenue is usually patient/family driven and funded. We will need to raise significant funds, in the millions of dollars, to move forward with this in hopes of potential treatment and improved quality of life for those living with ZTTK. This month, in honor of #RareDisease Day and all of the ZTTK warriors across the world please consider making a donation directly to our foundation using the link below: https://lnkd.in/eruefdej 💛☀️💛☀️💛☀️💛☀️💛☀️💛☀️💛☀️ Share this post !!

🧠 #Hyperekplexia is a rare, hereditary neurological condition which causes muscle rigidity, jerky movement and exaggerated startled reactions. 🔊 These reactions are often triggered by external stimuli such as unexpected lights, sudden sounds and movements. 📖 To find out more about the condition and the support we offer to those with #HereditaryHyperekplexia here at The Brain Charity, follow the link below 👇 https://lnkd.in/e9G3gse9

One of the questions that we keep asking ourselves at Biostache is, 'how can we make this stuff engaging to more people'? By writing this article, not only do I hope to answer this question, but also involve myself in a really interesting piece to write. Please give it a read, let me know what you think! . . . . . . . FightMND #biotech #bigfreeze #clinicaltrials