Early diagnosis and treatments for familial hypercholesterolemia (FH) is so important! Join us for a webinar designed for caregivers and people with FH to learn about the latest treatment options: https://brnw.ch/21wDQUr #FH #EarlyDiagnosis
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Early diagnosis and treatments for children with familial hypercholesterolemia (FH) is so important! Join us for an on-demand webinar designed for caregivers and people with FH to learn about the latest treatment options: https://brnw.ch/21wDQUr #FH #EarlyDiagnosis
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Discover the stark disconnect between physician and caregiver-reported symptom frequencies for individuals living with #AS & #SYNGAP1. Our latest blog post sheds light on the crucial significance of symptom reporting in the early diagnosis of rare conditions. Don't miss miss it: https://hubs.li/Q02hVPd30 #angelmansyndrome #syngap1 #childhoodseizuredisorders #raredisease #specialtydisease
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Doctor⚕orphan drug expert💊rare diseases🧬consulting📊digital strategies🚀online marketing📈doctors mega network 👨🏼⚕️👩🏼⚕️
Behind every #diagnosis of a #raredisease lies a unique individual, often struggling in silence with #symptoms that defy conventional understanding. By seeking out these #patients, #HCPs and caregivers affirm the value of every life, committing to provide the best care and support possible. Increasing #DiseaseAwareness is one strategy to find more #patients, contact me how you can get more patients on therapy.
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Grief takes on many forms in an #ocularmelanoma diagnosis - please validate where you are today, & seek appropriate support when needed. Share with another omie patient or caregiver - we all experience loss here. Read about how grief can heal here: https://lnkd.in/g9Wkize8
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M.D., D.G.O, (ObGyn) Senior Consultant Gynaecologist & Laparoscopic Surgeon & Excisional Endometriosis & Onco Surgeon at Nalini Speciality Hospital
Raising awareness for endometriosis is crucial to ensure early diagnosis, improve treatment outcomes, and support those affected by this often misunderstood condition. #endometriosis #endometriosisawareness #endowarrior #yellowforendo #womenshealth #supportendo #breakthesilence
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Identifying the cause of bowel symptoms can be challenging even for seasoned clinicians - sign up for our FREE webinar and discover a new Lower GI Diagnostic Pathway for general practice. Booking link: https://buff.ly/460dD98 #BowelDisease #CancerDiagnosis #PrimaryCare #CrohnsDisease
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[AES Recap] Angelman syndrome and SYNGAP1 exhibit overlapping symptoms, yet the frequency of each symptom sets the conditions apart. Our third poster aimed to delineate these symptoms to improve disorder comprehension and understanding of the impacts on patient care as viewed by providers and caregivers. Leveraging healthcare claims data and caregiver-reported surveys, we found that caregiver-reported symptom frequencies were significantly higher than those found in claims data, likely illustrating a more complete picture of the constellation of symptoms than claims data, which tends to see only a handful of the most active symptoms. Emphasizing symptom reporting is pivotal for earlier diagnosis and better support for patients and caregivers along their diagnostic journey. Thank you to our partners at the Children's Hospital of Philadelphia and the University of California, San Francisco for this collaboration! #AES #AES2023 #syngap1 #angelmansyndrome #epilepsy #childhoodseizsuredisorders
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Attention healthcare professionals! Improve your understanding of Tardive Dyskinesia (TD) with this helpful poster on differential diagnosis. Enhance your ability to differentiate TD from other movement disorders. #TardiveDyskinesia #TDWeek #HealthcareEducation
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Unveiling the truths about Fibromyalgia! It’s time to break the silence and spread awareness. It is important to get a proper diagnosis, learn ways to manage pain and be aware of symptoms in adolescents. It is essential to spread awareness about fibromyalgia as many physicians might not recognize the symptoms, especially in younger patients. To join our online class, visit sarahlynnsolutions.com #SarahLynnSolutions #ChronicIllnessCoach #FibromyalgiaAwareness #ComplexRegionalPainSyndrome #CRPS #CRPSAwareness #CRPSWarrior #AmplifiedMusculoskeletalPainSyndrome #ChronicPainWarrior #ChronicPain #ChildhoodPain #JuvenileFibromyalgia #FibromyalgiaFacts #HealthStatistics #ChronicIllness #MedicalMisdiagnosis #ADHDandFibromyalgia #OverTheCounterMedications #HealthcareAwareness #FibromyalgiaSupport #SpreadAwareness #HealthStatistics #MedicalResearch #FightAgainstFibromyalgia
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Delays in diagnosis can be devastating to patients and their families. Take a look at this blog by Kelly Reynolds to understand more 👇🏻 https://bit.ly/4dxuFOA #medical #NHS #clinicalnegligence #diagnosis
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