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Have you experienced a rare or less common urology cancer? That's bladder, kidney, penile or testicular cancers. If so, Cancer52 would like to hear from you. The Urology Foundation is a member of Cancer52, a charity and an alliance of patient groups and charities that represent those with rare and less common cancers. Patient insights from the survey will to help shape Cancer52’s work to raise the collective voice of rare & less common cancers. All responses to the survey are anonymous and the survey is fully GDPR compliant. Have your say by following this link: https://bit.ly/C52survey #urology #cancer #urologycancer #patientvoice

We need to do so much more

Did you know that getting tumor tissues from patients is one of the most critical issues in rare cancers? Hear from Dr.Kevin Jones, a long-time supporter of Clear Cell Sarcoma Foundation and Division Chief of Sarcoma and Professor at Department of Orthopedics at University at Utah on how invaluable fresh(untreated) CCS tumor tissue can be in finding a cure for this ultra-rare cancer. Clear Cell Sarcoma Foundation (CCSF) is a partner of Pattern.org, a non-profit organization launched by Rare Cancer Research Foundation (RCRF) that enables cancer patients to directly donate their tumor tissue and medical data to high-impact research projects. To help us continue this partnership, please consider donating to support our cause at https://lnkd.in/epEPSwHm #ClearCellSarcoma #SarcomaAwareness #Sarcoma #HelpCureClearCellSarcoma #RareCancerAwareness

July is #SarcomaAwarenessMonth 📅 Both #RANZCR and Radiation Oncology: Targeting Cancer are committed to informing the public about this rare group of cancers. #Sarcoma can affect bone or soft tissues and occurs at all ages, including in children and young adults. Read Ben's story on how he overcame #Sarcoma with the help of #RadiationTherapy and has since raised thousands of dollars for cancer research ⬇️ https://ow.ly/8xg650Sv6l5 #RadiationOncloogy

On June 29th, 2023, our family received distressing news: our 5-year-old son was diagnosed with Medulloblastoma, Brain Cancer. Logan underwent major surgery to remove the tumour, followed by 30 rounds of radiotherapy and 4 rounds of chemotherapy, completing his treatment in February this year. With no signs of metastasis and complete tumour resection, his prognosis stood at a 75% survival rate. While these may seem like favourable odds, the sobering reality remains: 1 in 4 children do not survive In March this year, Logan achieved remission with no evidence of disease. He has returned to full-time schooling, demonstrating remarkable physical resilience and only minor speech delays. While ongoing NDIS support will aid his rehabilitation, we are grateful for his overall recovery, mindful that most children with similar diagnoses face severe long-term risks and side effects. Logan's journey continues with regular scans every three months for the next two years, and subsequently every six months until the five-year mark when he may be deemed cured. Despite the passage of time, the fear of relapse remains palpable. Unfortunately, there is now also an elevated risk for him to develop secondary cancers later in life, ironically stemming from the chemotherapy and radiation treatments he underwent. For people who do experience relapse, the importance of research and clinical trials exploring alternative treatments and targeted immunotherapies cannot be overstated. It's critical to note that treatment protocols for paediatric brain cancer have seen little change over the past six decades. Therefore, every contribution to cancer research represents progress, offering hope for improved survival rates and reduced treatment-related complications in the future. Over the past year, the support from Holman and now RWC has been invaluable in navigating this challenging chapter in my family’s life. It underscores the significance of a strong support system, both at work and at home. This year, my colleagues are participating in the Cancer 200 ride—an endeavour requiring months of rigorous training. Witnessing someone close battle cancer can be incredibly difficult, often leaving us feeling helpless in how best to support. I am deeply moved by their solidarity in taking on this challenge. If you are able to support them in this cause, we would be immensely grateful. #LogansHeroes https://lnkd.in/gSwNPP_6

Good microcopy is incredibly important - not just here on LinkedIn, but also pretty much anywhere on the internet. Using compelling examples from Guide Dogs Australia, National Breast Cancer Foundation, Animals Australia, and The Royal Women's Hospital, this article dives into what makes for good microcopy, why it's important, and how you can improve yours. DIVE IN: https://lnkd.in/gFHJn5fW #contentmarketing #contentdesign #uxdesign #microcopy #nfp

July is Sarcoma Awareness Month! Every July, we honor, celebrate, and amplify the Sarcoma community in support of this rare cancer. As we begin Sarcoma Awareness Month, here are some statistics about the disease, per the Sarcoma Foundation of America: In recent year, sarcoma has comprised 1% of adult cancers diagnosed in the United States while also comprising 15 to 20% of childhood cancers. Latest estimates show that 17,560 people in the United States will be diagnosed with sarcoma and ~220,000 patients and families are living with sarcoma in a given year. There are so many ways to learn and get involved with this inspiring community! We can't wait to share more. #sarcoma #sarcomaawarenessmonth #orthopediconcology #oncology #musculoskeletaloncology #bonecancer #cancerawareness #rarecancer

During #BlackHistoryMonth, we ask what is being done to eliminate the disparities faced by Black women and men diagnosed with breast cancer? Play for P.I.N.K. is proud to fund the research of three amazing doctors whose research is focused on studying these disparities and how to end them. Click the link in our bio to learn more about the research of Drs. Ambrosone, Dr. Hong and Dr. Fayanju.

Living with a Chronic Illness - Coping Strategies and Mental Well-being. From an episode of "A Day in the Life," Jason Hendler and Chad Billmyer, a patient and care partner married couple, share their journey of Jason's multiple myeloma diagnosis. #cancer #bloodcancer #cancerresearch #myelomaresearch #mmsm #oncology #hematology #myeloma #multiplemyeloma #InternationalMyelomaFoundation #hemeonc #cancersupport #nonprofit

Back in 2019 … THIS YEAR WE WILL DO IT AGAIN Want to teach your kids to fundraise? Join us here: 👇 https://lnkd.in/eSxkqZyv Visionary of the Year Candidate” to help fundraising for the The Leukemia & Lymphoma Society MISSIONS 1) Increase funding to the TAP program. This is a strategic venture philanthropy initiative that seeks to accelerate the development of innovative blood cancer therapies that save lives. Funding goes to cutting-edge research leading to breakthroughs in immunotherapy, genomics, and personalized medicine 2) Speed up the advancements in Health Equity (education and services), specifically for my #Latino community in the U.S. Provide free education and support for blood cancer patients and families, including personalized, one-on-one support, assistance with identifying and enrolling in clinical trials, and more. 3) Policy changes: Mobilize thousands of advocates to drive policy changes that accelerate the development of new cancer treatments and break down barriers to care #llsvisionary #bigdreamsboldmoves #hematology #fundraisingforacause #canceresearch #healthequity