Vitalant’s Post

"This model of care should be the standard." While I don't have a close connection with hemophilia specifically, I love and care for someone with a chronic illness that affects every part of their life. The entire time I was at the Hemophilia Center, I had chills down my arms and tears ready to fall from my eyes. I couldn't help but think about how big a difference a place like this could make in our lives. Having a chronic illness is challenging in ways that go far beyond the symptoms of the condition. It affects your ability to work and go to school, your social life, and your physical mobility. It's a constant, loud thought that rings through your head every hour of every day. To manage this, individuals often require a large team of specialists. Each specialist needs to be familiar with the condition, which makes assembling this team extremely difficult. Oftentimes, those with a chronic condition are left to assemble this team on their own—an almost impossible task. And don't even get me started on dealing with insurance companies. The Hemophilia Center of Western Pennsylvania understands these challenges and meets them head-on. They use a comprehensive care approach. In one building, they have physicians, physical therapists, and social workers. While each of these professionals is an expert in their own field, they are also well-versed in caring for patients with hemophilia. It’s hard to explain just how special that is. Living with a chronic illness can beat you down. Caring for someone with a chronic illness can be heartbreaking. But, man, this place has given me hope for what the future of care can look like.

Today, on Rare Disease Day, we're shedding light on Amniotic Fluid Embolism (AFE) – a rare but serious obstetric emergency. Did you know? 👇 AFE occurs in approximately 1 in 40,000 pregnancies worldwide, making it one of the rarest complications during childbirth. Despite its rarity, AFE poses significant risks to both mothers and babies, requiring prompt recognition and immediate medical intervention. AFE remains a challenge for healthcare providers due to its sudden onset and unpredictable nature, emphasizing the importance of heightened awareness and preparedness. Today, we join in solidarity with other organizations who also advocate for better support, research, and resources for their affected communities. Together, we can make a difference! Stay tuned...our AFE Awareness Day campaign kicks off tomorrow! #RareDiseaseDay #AFEawareness #MaternalHealth #RareButReal #AFEAwarenessDay #ObstetricsGynecology #Obstetrics #ObstetricsCare #ObstetricsandGynecology #RareDisease #RareDiseases #RareDiseaseAwareness

O, so special! Only 7% of the population can say they are the universal donor, O-negative. Anyone can receive the universal blood type, making it the most urgently needed blood types. But O- types can only receive O- blood. In addition to being crucial for trauma patients, It's also the only type that can be given to premature babies. Whether you're 🅰🆎🅱🅾, when #YouGiveTheyLive ♥ Learn more about your type 👉 SouthTexasBlood.org/MyType

Small steps bring us closer to success. Change is happening. The American Heart Association removed race from a commonly used heart disease risk calculation. OBGYNs are no longer including race as a risk factor when determining if a pregnant woman should attempt a vaginal birth after a C-section. The American Thoracic Society is urging physicians to replace race-based lung function evaluations. Every stride we make in reforming the #healthcare system brings us one step closer to achieving health equity for all. Let’s celebrate these victories, no matter how small, as they demonstrate progress towards more inclusive healthcare delivery. Join KC Health Collaborative as we collaborate with community partners to dismantle racial biases in healthcare and ensure equitable access to healthcare for all. Let’s get to work. ** Follow KC Health Collaborative to stay up-to-date about our efforts in fostering health equity and community connections in the Kansas City region. #healthequity #kansascity

This article beautifully explores the concept of time toxicity in health care and offers a raw, honest and vulnerable perspective on the intricate relationship between a doctor and patient during the final stages of life. It highlights the challenges faced in critical care decision-making, emphasizing the importance of tailoring shared decisions and potential treatments to the individual. It underscores the significance of truly listening, building trust and holding space for people to express what is ultimately important to them as they approach the end of life. In ICU settings specifically, balancing the application of invasive or prolonged medical interventions with the patient's individual journey, unique situation and desired outcomes is crucial to avoid potentially unnecessary suffering. When done well, we can guide patients and their loved ones to embrace what time remains wholly and not only medically. Comfort, dignity, meaningful time for connection with family and friends, moments of acceptance and release; opportunities missed if the focus of care does not shift in time to include the person and not just the pathology. Thank you Ranjana.

Know how to handle seizures and epilepsy with these essential do's and don'ts. Protect, support, and stay calm during an episode. For expert care and effective treatment, trust Saifee Hospital—your go-to place for specialized care in managing epilepsy. Prioritize safety and get the best treatment today! #EpilepsyAwareness #SeizureFirstAid #EpilepsySupport #SeizureCare #StayCalm #Viral #ExplorePage #InstaDaily #HealthTips #WellnessJourney #EpilepsyMatters #HealthFirst #SeizureSafety #ExpertCare #SeizureResponse #EpilepsyTreatment #ProtectAndSupport #EpilepsyHelp #HealthCareTips #SaifeeHospital

October is Dysautonomia Awareness Month! Diss the Dys hopes for more awareness and research, so patients with dysautonomia don’t have to suffer through misdiagnosis after misdiagnosis, and to be subjected to treatments that may not even be helping. Picture shows our Founder on 2-1-2023 at weekly IVIG Treatment #24 posing with Baxter the Pole. Dys Warriors are in need of safer and more effective treatment options. Her weekly treatments with Baxter had to unexpectedly end three weeks later due to a severe adverse cardiac reaction to IVIG. Baxter was great at holding up the IVIG bottle and the infusion pumps during rough walks to the bathroom during six hour plus infusions. Baxter International Inc. Someday we hope treatment options can be more effective and less risky. Let's increase awareness in hopes for a better future for Dys Warriors and Dissolve Dysautonomia!  #dysautonomia #dysautonomiaawareness #rejoiceforturquoise #dissthedys #dysautonomiawarrior #thankyouBaxter #dysautonomiaawarenessmonth

This Seizure Action Plan Awareness Week, discover the key elements of a comprehensive plan and empower yourself or your loved ones with the confidence to manage epilepsy. Watch our latest webinar on Rescue Medications and Seizures Action Plans in School to learn more: https://lnkd.in/edKjhDrE

According to NIH in 2021, around 2.8million people in the US live with "active" epilepsy. For children 17 and under, the estimated number based on reports of seizures (many individuals and families do not report) is around 470k. It's important to note that seizures can come back at anytime even if the individual is seizure-free for years. Another fun fact, for children attending schools and universities, epilepsy first aid training, which can often prevent death and provide life saving time and prevent further injury, is not provided to staff/personnel as part of standard first aid. Many of our educators, administrators, and even our law enforcement, do not know how to recognize a seizure (there's more than one type!). Create an action plan. Educate those around you. Get trained.  #epilepsyawareness #educateyourself #empowerment #savealife

Coming to the Southern Region Burn Conference Symposium? Join our Burn Education Trivia Challenge on Friday, October 11 from 7–8:30 PM at the Twin City Quarter Marriott Winston-Salem. Register here: https://bit.ly/4eGfd3a (For HCPs Only) NexoBrid® is used for eschar removal in adults and pediatric patients w/ deep partial and/or full thickness thermal burns. See Limitations of Use. Contraindicated in patients w/ hypersensitivity to anacaulase-bcdb, bromelain, pineapples, papayas or papain. Common side effects inc. pruritus, pyrexia, wound complication, anemia, vomiting, and insomnia in adults; and pruritus, pyrexia, and vomiting in pediatric patients. See Full Indication, including Limitations of Use, and Important Safety Information and Full Prescribing Info: bit.ly/ISIPI. #BurnCare