Zus Health’s Post

Helping teams apply evidence in the care of infants and families. The Vermont Oxford Network (VON) Institute for Evidence-Based Practice is dedicated to helping teams apply evidence in the care they provide to infants and families by integrating proven effective practices into care provided in a local context. While VON is a leader in data-driven quality improvement, this Institute formalizes the role of evidence in defining Potentially Better Practices that can be adopted or adapted through sound quality improvement methods that consider the role of families, teams, and other diverse local factors in the care of infants. The evidence explored by the institute informs toolkits of Potentially Better Practices used in VON quality improvement programs. For the broader worldwide improvement community, the Institute develops evidence briefs to translate the findings of studies in newborn care to practice in specific local settings. We also discuss the latest evidence and its implications in VON Grand Rounds webinars. Learn more about these practices here:

So many great points adressed in this very first podcast by #ISPEP. Picking 1 in particular: placebo in trials. Very wise words by Robert Mitchell-Thain, stressing that placebo controlled trials are still needed, but not for patients in a last resort type situation. And with our current knowledge, and data, it is possible to use RWE as an alternative to placebo. As a real example, via our patient engagement collaboration, use of placebo was dropped on the Repair MDS trial, and RWE used instead. A great benefit, alongside the fact it uses repurposed drugs. Great collaboration. So hope for great results. #PEPTalk #placebo #clinicaltrials #patientengagement #patientcentricity

🚀 Attention everyone interested in pediatric innovation: today there is a great hybrid Practice-Based Research Conference 2024, organised by our partners at BC Children's Hospital, Vancouver, BC Children's Hospital Research Institute (BCCHR) and the Women's Health Research Institute (WHRI). There is an online session from 12:00 pm - 1:00 pm PST “Industry Partner Panel: Empower Health through Innovation and Partnerships” exploring the evolving digital health landscape in Canada and strategies for forming effective partnerships between digital health companies, clinicians and academic researchers - you can still sign up - see comments section for the link. ****If you want to know what to expect, previous sessions can be found here including the presentation that the leading pediatric endocrinologist Dr. Shazhan Amed did on our collaboration to support pediatric patients with Type 1 diabetes - see comments for link. 🎤 Presenters include many of our partners and friends: Duncan Weatherston (CEO, Smile Digital Health) Matthew Chow (Chief Mental Health Officer, TELUS Health) Sandy Whitehouse (CMO, Tickit Health) Adam Hutton (COO, Healwell AI, WELL Health) Joby McKenzie (Managing Director, Teladoc Health) Shaneel Pathak (CEO, Zamplo) Faten Alshazly (CEO, HealthEMe) The day event’s keynote speaker is Dr. Katrina Plamondon, assistant professor, Michael Smith Health Research BC scholar, and co-director of the Equity Science Lab in the Faculty of Health and Social Development at the University of British Columbia Okanagan. We're excited to be part of the movement that pushes healthcare forward to better through innovation and research, partnerships and cutting-edge solutions, for women’s and child’s health. #HealthcareInnovation #DigitalHealth #HealthTech #HealthEmpowerment #Healthresearch

I am thrilled to announced that I will be participating in a myTomorrows’ discussion panel on October 3 rd at 1:30pm EST/7:30pm CEST: “Unlocking LGMD2I Clinical Trials: A Patient and Caregiver’s Guide to Participating.” As someone who’s closely involved with the Limb-Girdle Muscular Dystrophy Type 2I (LGMD2I) community, I know how important it is to have clear information and support when considering clinical trials. During this session, we’ll dive into practical steps for finding, accessing, and participating in clinical trials for people with LGMD2I. Joining me on this panel are Kat Bryant Knudson (Speak Foundation), Melissa Grove (LGMD Patient Advocate), Terri Ellsworth (Patient Advocacy Liaison). With Dennis Akkaya as our moderator, we’ll be sharing insights into the landscape of LGMD2I clinical trials, including: 1. Gain a clear understanding of clinical trials and their role in LGMD2I treatments. 2. Receive practical guidance on how to find and access information on clinical trials, including how to make informed decisions together with your healthcare providers. 3. Learn key information on active LGMD2I clinical trials, including eligibility criteria and enrollment steps. I look forward to seeing you there! Register today: https://lnkd.in/eWukAUXP #LGMD #ClinicalTrials #HealthcareProfessionals #PAGs #PatientAdvocacy #RareDisease

Effective July 1, Imran Andrabi, MD transitions into the newly-created role of president and CEO of Froedtert ThedaCare Health, Inc., following Cathy Jacobson's retirement as CEO of the organization. In this role, he will build on her legacy to focus on creating a healthier future for Wisconsin by: • Predicting and preventing health care challenges to contribute to the well-being of our communities • Building integrated care models that ensure access to exceptional quality care that is safe, reliable, equitable and coordinated • Amplifying the academic mission of education, research and patient care • Deploying new solutions, including the power of technology, digital innovation and data analytics, to bring our aspirations to life

❗Did you hear about DATAcc by DiMe’s public launch event, “Transforming Alzheimer’s Disease and Related Dementias Research: New Core Digital Clinical Measures”? 📅 On Thursday, Nov. 14 at 11 a.m. ET, we will unveil our new core measures and the accompanying resources for #Alzheimer’s disease and related dementias (ADRD) to help speed clinical trials, improve patient outcomes, and provide a more inclusive, patient-centered approach to ADRD research. ADRD is one of healthcare's most complex and growing challenges, with 95% of those affected also managing chronic #comorbidities. Over 16 million family members and friends are caregivers, facing immense burdens alongside strained #healthcare systems. Yet, research lacks diversity, particularly among Hispanic and non-white populations, leaving critical gaps in understanding how different communities experience and respond to treatments. Our measures reflect meaningful aspects of health as reported by dementia patients, caregivers, and healthcare providers. Join us to learn how you can incorporate these measures and resources into your work to: ▪️ Standardize digital measures across trials to enable more diverse patient recruitment and deliver faster, cost-effective results ▪️ Capture continuous data to empower clinicians with real-world patient insights, leading to more informed and timely decisions ▪️ Increase trial efficiency, reducing costs and ensuring trials are more representative to meet the specific needs of all communities 🔗 Register now: https://bit.ly/3Ul8LGY In the meantime, watch this video where our partners share why digital measures are key to transforming research and care in ADRD. Cogstate, Altoida, Inc., Merck, Eli Lilly and Company, ki:elements

Effective July 1, Imran Amjad Andrabi, MD transitions into the newly-created role of president and CEO of Froedtert ThedaCare Health, Inc., following Cathy Jacobson's retirement as CEO of the organization. In this role, he will build on her legacy to focus on creating a healthier future for Wisconsin by: • Predicting and preventing health care challenges to contribute to the well-being of our communities • Building integrated care models that ensure access to exceptional quality care that is safe, reliable, equitable and coordinated • Amplifying the academic mission of education, research and patient care • Deploying new solutions, including the power of technology, digital innovation and data analytics, to bring our aspirations to life

🌟 Exploring Challenges & Opportunities in Pediatric Clinical Trials 🌟 Pediatric clinical trials are at the forefront of innovation in healthcare, but they also come with unique challenges. At Zanteris, we're diving deep into these complexities to pave the way for a healthier future for our youngest patients. 🚀 Challenges: From ethical considerations to limited patient populations and age-related variability, pediatric trials demand meticulous attention and strategic solutions. 🌈 Opportunities: Despite the hurdles, there are abundant opportunities for innovation. From advanced modeling techniques to real-world evidence and patient advocacy, we're reshaping the landscape of pediatric research. As we navigate these challenges and seize opportunities, our commitment to pediatric healthcare remains unwavering. Together, let's redefine the narrative and build a brighter future for our children. 📚 References: Dive deeper into the world of pediatric clinical trials with our lastest insight: https://lnkd.in/d3Biyyqm. Join the conversation and let's drive pediatric research forward ! #PediatricClinicalTrials #HealthcareInnovation #PatientAdvocacy #Zanteris #Research #PediatricHealthcare #Unlockclinicalexcellence

Transform Your Pediatrics Business with Doctivity's Data-Driven Approach 🚀💡 At Doctivity, we believe that precision in pediatric analytics paves the way for unparalleled efficiency and growth. Our unique blend of client data, specific market insights, and proprietary data feeds equip peds facilities with the power to turn information into actionable strategies. 📈🔍 Step into a future where decisions are informed, strategies are effective, and growth is inevitable. Discover how Doctivity is revolutionizing the way pediatric businesses operate. 🌟 Ready to make data work for you? Schedule a demo and explore a smarter, more efficient way of doing business with Doctivity. 💡👉 https://lnkd.in/eAcGkxYF #DoctivityData #HealthcareAnalytics #BusinessGrowth #PerformanceImprovement

Transform Your Pediatrics Business with Doctivity's Data-Driven Approach 🚀💡 At Doctivity, we believe that precision in pediatric analytics paves the way for unparalleled efficiency and growth. Our unique blend of client data, specific market insights, and proprietary data feeds equip peds facilities with the power to turn information into actionable strategies. 📈🔍 Step into a future where decisions are informed, strategies are effective, and growth is inevitable. Discover how Doctivity is revolutionizing the way pediatric businesses operate. 🌟 Ready to make data work for you? Schedule a demo and explore a smarter, more efficient way of doing business with Doctivity. 💡👉 https://lnkd.in/eAcGkxYF #DoctivityData #HealthcareAnalytics #BusinessGrowth #PerformanceImprovement