ERN RARE-LIVER

Call for Participants: ERN RARE-LIVER EASL Academy 2025 We are excited to announce the ERN RARE-LIVER EASL Academy 2025, hosted by the Medical University Heidelberg, from April 10-11, 2025! This two-day academy is designed for early-career hepatologists and medical fellows, focusing on translating clinical guidelines into real-life care for rare liver diseases such as cystic liver diseases, sclerosing cholangitis, primary biliary cholangitis, and Wilson disease. Key Objectives: ·      Deepen your understanding of rare liver diseases. ·      Collaborate with experts and peers. ·      Explore innovative patient care strategies. ·      Win free admission to the EASL Congress 2025/2026! Dates: April 10-11, 2025 Location: Medical University Heidelberg, Germany Costs: Accommodation & meals provided. Travel reimbursement available. To apply, please submit your application to https://lnkd.in/de6jDiqF by Wednesday, November 13th 2024. Include: 📌 Short CV including list of publications. 📌Motivational statement outlining your interest in rare liver diseases and any prior experience in this field. 📌Letter of recommendation from an ERN member centre. Don’t miss this chance to advance your expertise and network with top experts in the field! More information on our website here: https://lnkd.in/d4mGijNE #Hepatology #LiverDiseases #ERNRARELIVER #EASLAcademy #MedicalEducation

The ERICA ERN Research Conference is coming up! It will take place in Udine Italy from 11th Decmber 13th December, 2024. ERICA aims to strengthen and interconnect ERN research and innovation capacity. This conference encourages the active ERN research community to get to know each other in person, present exciting research and discuss the future of ERN related research. For more information check out the link: erica-rd.eu ERN-related research can be showcased in poster presentations: you can also find the call for abstracts which is open for submission until 1st October, 2024 on the conference website. #ERICAEU #ERNResearch #ResearchConference #Innovation #RareDiseases #UdineConference #ERNInnovation #ResearchCommunity #HealthcareInnovation #MedicalResearch #CallForAbstracts #Conference2024 #PosterPresentation #Networking #ScienceConference #EUResearch #ResearchAndInnovation #HealthcareResearch #ERNConference #FutureOfResearch

🖥️TODAY! This ERN RARE-LIVER Webinar at 5pm (CEST) will focus on how to communicate with adolescents and young adults. See you in 1 hour! Link here: https://lnkd.in/eQ37fwUu

Only a Few Days Left! Don’t Miss Out! 🗓 Mark your calendar: 17 September 2024 🕔 Time: 5 PM CEST Join us for an invaluable session in the ERN RARE-LIVER Webinar Series: "How to Communicate with Adolescents and Young Adults" 🎥 We’ll kick off with #Adolescent Brain & Development presented by Janne Suykens from Ghent University Hospital, followed by Practical Tools for #Communication with Dr. Jemma Day from King’s College Hospital. The webinar will conclude with a Youth Panel Discussion. 📌This is a must-attend for healthcare professionals who want to improve communication strategies with young patients. 🔗 Get the full details here: https://lnkd.in/e9kvXzUK Make sure to join us for this expert-led, engaging session! #Webinar #Healthcare #AdolescentHealth #ERNRareLiver #ERN

📅 Save the Date! 📅 🌍 7th International Conference on Pediatric Liver Disease  📍 Location: Hamburg, Germany   🗓 Date: February 20-21, 2025  Join for two days of expert discussions, focused on the latest advancements in pediatric hepatology, surgery, and transplantation. This year’s symposium will highlight: - Biliary Atresia - Primary and Secondary Sclerosing Cholangitis - Wilson’s Disease - Liver Transplantation Mark your calendars - registration will open soon! https://lnkd.in/dpf2Jb-M #PediatricLiver2025 #Healthcare #LiverDisease #Hamburg #ERNRareLiver #ERNTransplantChild

⏰ Deadline Approaching! ⏰ 🚨 Open Call for CPMS Helpdesk Fellows 🚨 Are you an ERN RARE-LIVER member? Don't miss this chance to propose a young fellow from your institution to join the ERN RARE-LIVER CPMS Helpdesk team! This is a unique opportunity to gain valuable experience and collaborate with experts across Europe. 🗓 Deadline: 3 September 2024 at 11:59 pm   💼 Role: CPMS Helpdesk Support   📅 Duration: 1 year, starting October 2024  Submit a short CV, a letter of interest, and an estimate of weekly hours to ern.rareliver@uke.de. Don’t miss out—apply today: https://lnkd.in/e6sJEYS4 #CPMSFellows #ERNRareLiver #OpenCall #HealthcareOpportunity

🚨 Attention all liver disease researchers and professionals! 🚨 The ERN RARE-LIVER call for workshops in 2025 is now OPEN! If you’re part of a disease working group or have an initiative that aligns with our mission, this is your chance to secure funding for a workshop. 📅 **Application Deadline:** 1 September 2024 📍 **How to Apply:** Complete the application form, detailing your workshop’s name, expected number of attendees, proposed date, and other key information. ✅ Don’t miss out on this opportunity to bring your ideas to life! Submit your application to ern.rareliver@uke.de. For more details and to download the application form, visit our website: https://lnkd.in/e2YkxC23 #LiverResearch #ERNRARELIVER #MedicalWorkshops #FundingOpportunity

🚨 Join Our Next Webinar! 🚨 🗓 Date: 17 September 2024 🕔 Time: 5pm CEST 🎥 Topic: How to Communicate with Adolescents and Young Adults Don't miss this insightful session in the ERN RARE-LIVER Webinar Series! Learn from experts about effective communication strategies tailored for young patients. The program will start on the topic '#Adolescent Brain & Development' with Janne Suykens from Ghent University Hospital, followed by 'Practical Tools for #Communication' with Dr. Jemma Day, King’s College Hospital. The session will end with a Youth Panel Discussion. This is a must-attend event for healthcare professionals working with young people! 🔗 More information on our website: https://lnkd.in/e9kvXzUK #Webinar #Healthcare #AdolescentHealth #ERNRareLiver

The story of Veselina Solakova, who was diagnosed with #Autoimmune #Hepatitis at the age of 3 and came to seek an expert in Germany . Even though she already had advanced #cirrhosis, changing her maintenance therapy to azathioprine and adapting the doses to the minimum ⬇ required to maintain remission allowed excellent development and a high quality of life for almost thirty years now . Neither the treatment nor the cirrhosis were reason not to have a family, and she is now a happy mother of two healthy children 👩👦👦 . She and her father tell her story here 🔗 : https://lnkd.in/eCRSvUJS #AIH #raredisease #ernrareliver #ern

📢 We are pleased to announce an Open Call for all #ERN #RARELIVER members to propose a fellow within their institution to be part of the ERN RARE-LIVER CPMS Helpdesk team! 🎯 The aim is to include three different young fellows from three different member centres, and to have both #paediatric and adult representation. 💻 Role: CPMS Helpdesk Support. 📅 Duration: 1 year, beginning October 2024. 💶 Funding: €15.000 - €25.000. ✅ Deadline to propose candidates: 3 September 2024 at 11:59 pm. 📧 We will only require to have a short CV highlighting relevant experience and qualifications of the candidate, a short letter by the candidate delineating his/her interest and their fields of expertise, and an estimate of how many hours / week can be invested into this activity. 📝 All proposals will be submitted to the Management Board for review and final decision. We encourage members to apply to ern.rareliver@uke.de to be part of this exciting initiative! Details on our website: https://lnkd.in/e6sJEYS4 #ERNRARELIVER #ERNs #sharecarecure #friendsaroundeurope #rareliver   #euhealth  #opportunity #collaboration #Rarediseases                                                         #Patientenorganisation         #opportunity #collaboration #collaborativesupport                                                #telehealth #research #orphandiseases #telemedicine #digitalhealth