Together for Short Lives

Wonderful news for the incredible staff, volunteers and families supported by Tŷ Hafan. Tŷ Hafan provides support to children with life-limiting and life-threatening conditions within the hospice and in homes and communities in Wales. Through her support of Tŷ Hafan, Her Royal Highness The Princess of Wales will shine a light on this amazing children's hospice, and the wider children's palliative care sector throughout Wales.

📢 There's still time to join our team as our next Director of Service Development & Improvement! This is a really key role that drives the strategy in the delivery of not only our work with professionals, families and children, but the whole children's palliative care sector as well. 📆 Apply by Thursday 6 January 👉 Apply now: https://lnkd.in/dtB9vxR

📢 Do you care for a child or young person in England who needs palliative care? Are you a children's palliative care professional, service leader, academic or researcher? Do you commission services? The Palliative and End of Life Care Commission wants to hear from you! You can help shape the commission's findings and recommendations to the UK Government and the NHS. The commission is particular keen to hear your views on how palliative care can help the shifts to: - Moved care from hospitals to communities - Make better use of technology - Prevent crises - Integrate services The Commission wants to hear from the widest possible community. Submit your response today at https://bit.ly/3PVB4cs

Meet Stevie. As our Energy Advisor, Stevie helps families caring for seriously ill children understand and reduce their energy bills. Stevie has written a new blog with some of her top tips to reduce your energy bills this winter. Head to our website to learn more: https://lnkd.in/e2Dt3riE

Join us and Hospice UK for a webinar about the Children’s Palliative Care Outcome Scale (C-POS). We will be joined by Professor Richard Harding, the Principal Investigator for C-POS, to explore a detailed review of the project, personal stories and an international perspective on the tool's development and potential. 📆 Thursday 13 February, 2pm Find out more and sign up here: https://lnkd.in/eBeRkqek

We're on the look out for our next Chair of the Board of Trustees. Over the last couple of years, we've seen some real success at Together for Short Lives so you'll be joining at a really exciting time. You'll be responsible for our governance and our strategy as we enter into the next phase of our development growth. Find out more ➡️ https://bit.ly/3Pub9bt

This Sunday, I find myself reflecting on the incredible journey I’ve had as a full-time carer to my daughter, Holly. For 18 years she had complex health needs from the moment she was born, and those years brought a unique set of challenges, but also profound opportunities to make a difference. Through Holly’s story, I was able to engage with a community of people, sharing experiences and insights that helped drive meaningful change in the lives of others. I learned firsthand about resilience, empathy, and the incredible power of advocating for what’s right. The conversations, the awareness raised, the lives impacted—those moments continue to fuel me with purpose. As I reflect on this chapter, I deeply miss that side of my life. But I also recognize the strength and growth that came from it. Through those years of care and advocacy, I discovered a power within myself I didn’t know existed. And even now, that strength continues to guide me in everything I do. To anyone who may be facing their own struggles or who is in a caregiving role please remember your journey, no matter how difficult, holds within it the seeds of change, both for yourself and for the world around you. You are stronger than you realize, and every step forward, no matter how small, is progress. Keep going, because the impact you make today may shape a better tomorrow for others. #Caregiving #StrengthInAdversity #ReflectAndGrow #PurposeDriven #GoneButNeverForgotten #BereavedMum #MyHol💗 WellChild Together for Short Lives

Are you our next Director of Service Development & Improvement? This is a really key role that drives the strategy in the delivery of not only our work with professionals, families and children, but the whole children's palliative care sector as well. Apply now ➡️ https://bit.ly/3Wz6rxf 💵 Salary: £75,000 to £80,000

Over the last six months we've been supporting families in the South with their energy bills, thanks to our partnership with SGN. Find out more about this vital service ➡️ https://bit.ly/42ta4bz

How’s your 2025 shaping up? If you’re on the lookout for something that little bit different, we have just the thing to help - our brand new events calendar! From treks and cycles to runs and skydives, help us make a real difference to seriously ill children and their families this year and beyond. Head to https://lnkd.in/ezaxU8W5 to find the perfect event for you.