Cecilia Wandiga (she/her)’s Post

Having worked in an LMIC country undertaking medical research under various capacities, it is quite clear that given the setting of limited resources and high rates of poverty, disease, and systems that are overwhelmed in one way or the other, primary research emerges as a pivotal driver for shaping policies and decision-making. Through methodologies such as surveys, epidemiological studies, and community engagement, primary research plays a critical role in identifying health priorities, assessing healthcare infrastructure, and understanding the accessibility and utilization of healthcare services. By conducting intervention studies, building local research capacity, and advocating for evidence-based policies, primary research not only addresses the unique challenges in these resource-limited areas of Africa but also contributes to collaborative efforts, ensuring sustainable improvements in healthcare outcomes. Only through the meticulous implementation of these strategies can we aspire to bridge the substantial gap that currently exists between Low and Middle-Income Countries (LMICs) and High-Income Countries (HICs). .

A reminder of the webinar today!

Discover how the CMT Research Foundation is making a difference in the fight against Charcot-Marie-Tooth (CMT) disease! With over 300 million people affected globally, effective research funding is crucial. Riann Egusquiza, Director of Research, shares insights on their unique approach, impactful projects, and expert guidance for researchers. Recent success stories highlight groundbreaking projects advancing towards clinical trials, emphasizing the foundation's commitment to making a difference in the lives of those affected by CMT. Learn more about CMT and their unique approach to supporting Charcot-Marie-Tooth (CMT) researchers. Let's enhance the lives of those affected by CMT with research! Read the interview: https://lnkd.in/d-u-AGmX This interview has been published in English and Portuguese! #RareDiseases #ResearchFunding #Innovation #Charcot-Marie-Tooth #CMTResearch #scientifyRESEARCH

New funding options for #medicalreaseach. Are you interested in conducting a research project? Are you considering applying for the 50M€? Get in touch to get help in creating and submitting your proposal. #healthresearch #horizonEU #researchfunding

📢 Exciting News for Genomic Researchers and Funders! 🚀 The "Involve Australia: Guidelines for Community Involvement in Genomic Research" have been released. These guidelines are essential for ensuring meaningful community engagement in genomic studies. Here are my three takeaways: 1. 🌐 Inclusive Participation: Promotes diverse community involvement to enhance research relevance and impact. By involving various community members, we ensure that genomic research addresses the needs and concerns of all stakeholders. 2. 🔍 Transparency and Trust: Establishes clear communication strategies to build trust and understanding. Open dialogue and accessible information are critical for fostering a trustworthy research environment. 3. ⚖️ Ethical Considerations: Emphasizes ethical practices and respect for community values. Upholding high ethical standards ensures that research is conducted responsibly and respectfully, safeguarding the interests of participants. Don't miss out on this valuable resource. Download now and elevate your research - https://lnkd.in/grZc2iJP)

We’re thrilled at the news of this unprecedented partnership launched by the Bill & Melinda Gates Foundation, Novo Nordisk Foundation, and Wellcome Trust to accelerate global health access and equity. At Nexleaf, we've seen the impact of climate change and disasters like recent storms in East Africa in the continuous data we mobilize from health facilities. It's clear that there is an enormous unmet need for solutions that address the nexus of climate and health for low-income countries. To make meaningful progress on public health goals while tackling the risks posed by climate change, we must engage experts on the ground, support research rooted in the countries it serves, and collaborate with governments to scale tech and scientific breakthroughs in the hardest-to-reach places. We’ll be following developments from this initiative closely as we continue to do our part to build resilient, data-powered medical equipment and vaccine systems that improve the health of all patients. #ClimateAndHealth #GlobalHealth #TechForGood #DataForGood

📅 SAVE THE DATE for 🌎 International Congress on #RareDiseases and #OrphanDrugs 2024 on February 29 & March 1 2024 Don't miss the unique opportunity to be part of a transformative #event that is paving the way for advancements, collaborations, and hope in the realm of rare diseases organized by RARE DISEASES GREECE, member of EURORDIS-Rare Diseases Europe and BOUSSIAS Events following the #RareDiseaseDay 2024. Under the theme "Navigating the Uncharted: Advancements, Collaborations, and Hope in Rare Diseases", the International #Congress on Rare Diseases and Orphan Drugs aspires to stimulate dialogue and cooperation across all stakeholders – patient representatives, policymakers, clinicians, researchers, industry, payers and regulators – towards advancing a comprehensive rare disease strategy that promotes sustainability and equity within #healthcare ecosystems. To #discover new worlds and bring about change, all pioneers set out on uncharted waters. Join us to navigate them together! 📅 WHEN: 🔸February 29 (Hybrid -Technopolis City of Athens Gasholder 1 – Auditorium “Miltiadis Evert”) 🔸March 1 2024, (Digital) ℹ️ REGISTER HERE: https://bit.ly/3D1tPJO #rarediseasesconference24 #RareDiseasesDay2024 #RDD2024 #RareDiseasesGreece #RDGreece #Health #PublicHealth #ActionPlan #Science #Research 

🌟 Don't miss the Norway Life Science 2024 Conference highlighting the crucial role of health data! NordicRWE pioneers big data-driven research in the Nordics. Let's drive healthcare innovation from afar! #Norwaylifescience2024 #healthdata #bigdata #NordicRWE

📢 Global Health EDCTP3 launches research projects to combat MPOX 🌍 On August 14, 2024, the World Health Organization declared the #Mpox a Public Health Emergency of International Concern (PHEIC) as it rapidly affected populations across the Democratic Republic of Congo and a growing number of countries in #Africa. 🚨 In light of this unparalleled crisis, Global Health EDCTP3 quickly took action by launching five projects aimed at addressing some of the most pressing #research challenges at hand. Enabled by €6.7 million in funding, our projects started their operations on August 1. As sub-Saharan Africa (#SSA) leads the charge against this crisis, our commitment to support collaborative research places us at the forefront of the global effort to contain these outbreaks and safeguard #GlobalHealth. Click below to read our press release and learn more about our new projects 👇 🔗 https://lnkd.in/dcGPKRT4 ------------- European & Developing Countries Clinical Trials Partnership EU Science, Research and Innovation EU in Emergencies Africa CDC Irene Norstedt Cecile Billaux Laurent Muschel Isabel De la Mata Marta Norton de Matos Alemseged Abdissa Glaudina Loots Lund University University of Helsinki National Institute for Medical Research (NIMR) - Tanzania NORCE Norwegian Research Centre University of Kinshasa Ghent University University of Oxford VIB Makerere University Universitätsklinikum Hamburg Eppendorf Université Catholique de Bukavu University of Antwerp Institute of Tropical Medicine Antwerp IRD Institut National de Recherche Biomédicale ALIMA University of Manitoba EURAXESS Africa The Lancet Science|Business European Centre for Disease Prevention and Control (ECDC) Euresearch GloPID-R

We need continued investment in Applied asthma research if we are going to make significant improvements. We know what works so let’s see some investment in implementation science and systems thinking