The PTLS HOPE Research Foundation will measure success in various ways:
Research Milestones: Achieving specific research goals or breakthroughs in understanding Potocki Lupski Syndrome (PTLS) & creating an accessible treatment solution
Impactful Fundraising: Successfully raising funds that contribute to PTLS research and support programs.
Community Engagement: Growing community involvement, increased awareness, and active participation in PTLS-related initiatives.
Scientific Collaborations: Establishing partnerships with researchers, institutions, and organizations to advance PTLS research.
Advocacy Achievements: Impacting policies or healthcare practices that positively affect PTLS individuals and families.
Patient Support: Providing valuable resources, support networks, or services that improve the lives of PTLS-affected individuals and their families.
Clinical Advancements: Progress in clinical trials, treatments, or therapies that enhance the quality of life for those with PTLS.
Education and Awareness: Expanding educational resources, training, and awareness campaigns about PTLS within the medical community and the general public.
Feedback and Testimonials: Positive feedback from the PTLS community and professionals about the foundation's efforts and impact.
Long-Term Sustainability: Ensuring the foundation's longevity and continued commitment to PTLS research and support.
Success for the PTLS HOPE Research Foundation is multifaceted, encompassing both scientific advancements and the tangible improvements in the lives of individuals affected by PTLS.
General Partner & Managing Director at DFV | Healthcare VC, Entrepreneur, & Board Director
3moCongratulations and thank you for the important work that you all continue to do for the field Meg Smith Julie Harris!