World Duchenne Organization

World Duchenne Organization

Ziekenhuizen en gezondheidszorg

Using the power of the global community to advance research and quality of life for Duchenne Muscular Dystrophy

Over ons

The World Duchenne Organization (WDO) is a worldwide organization connecting 52 member patient organizations from 39 countries dedicated to finding a cure and viable treatments for Duchenne Muscular Dystrophy, a degenerative and fatal neuromuscular condition that affects mainly boys and men. Approximately one in 5,000 live male births worldwide results in Duchenne. The WDO has made it its mission to promote good standards of care, inform patients and create a hub to support and evolve our activities through dynamic advocacy and an active, vocal and informed patient body around the globe.  Our notable advocacy partners include the European Patient's Forum, EURORDIS, ENMC and Rare Diseases International. WDO is an eligible member of European Medicines Agency.

Branche
Ziekenhuizen en gezondheidszorg
Bedrijfsgrootte
2-10 medewerkers
Hoofdkantoor
Veenendaal
Type
Non-profit
Opgericht
2003
Specialismen
Defeating Duchenne Muscular Dystrophy, Raising awareness through campaigns and actions, Advocacy, Informing and sharing knowledge with parents and families, Developing Standards of Care, Gathering data and insight into Duchenne, Fighting for social inclusion, Proper genetic testing en New born screening

Locaties

Medewerkers van World Duchenne Organization

Updates

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