The count down is on and we're looking forward to #ISTH2024 in Bangkok! Follow along online between 22 - 26 June as we address the unmet needs in haemophilia, and raise awareness of rare diseases 👇 https://bit.ly/4bYBdoI #ChangingHaemophilia
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Today, on Rare Disease Day, we join the global movement to observe and raise awareness about rare diseases. It's a day dedicated to supporting those affected and shedding light on the challenges they face. At Caidya we believe in the power of collaboration and making a difference together, so let's unite to unlock the full potential of scientific breakthroughs in rare diseases. Together we can support rare disease patients and their families in overcoming the unique challenges that these conditions present. Join us in observing Rare Disease Day and raising awareness for those who need it most. #RareDiseaseDay #Caidya #RareDiseaseAwareness https://ow.ly/6rfA50QIZFb
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Today marks Rare Disease Day 2024, a time to shine a light on the challenges faced by those living with rare diseases. Show your support and unite with us in #PlayTheRareGame, as we foster awareness and cultivate a global community that transcends boundaries. Let's pass the ball to pass the word! Join the movement at playtheraregame.com #RareDiseaseDay EURORDIS-Rare Diseases Europe Chiesi Global Rare Diseases
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There are 6 000+ rare diseases currently identified. FH Europe Foundation advocates on behalf of two rare hyperlipidaemias HoFH and FCS. Along with other rare diseases, these communities experience issues with access to medicines, mental well-being and lack of awareness and understanding from those around them. We support #HoFH and #FCS on #RareDiseaseDay EURORDIS-Rare Diseases Europe
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Tomorrow, the European Conference on Rare Diseases begins. Insisting on a European Plan for Rare Diseases could be a key to some problems. We all hope that the new leadership of Eurordis will be inspired by the ideas of everyone present, in person or online. APN will be there! #ECRD2024 #rarediseases #apneuromusculares #doençasraras #RareEU
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Climate Change|Sustainability|Green Deal|Green Agenda|Environment|Law|Corporate Governance|Climate Reality Leader|Author|Humanitarian|Keynote Speaker
Rare Disease Day was first observed in 2008 by EURORDIS-Rare Diseases Europe and the Council of National Alliances to raise awareness about rare diseases. It falls on the last day of February, but in leap years like 2024, it is observed on February 29th. This day aims to shed light on the challenges faced by individuals and families affected by rare diseases. The theme for Rare Disease Day 2024 is "Share Your Colours," emphasizing the importance of collaboration and support for those with rare diseases. This day aims to raise awareness, build a community, and promote equity in healthcare access for individuals with rare diseases. It serves as a reminder that while these diseases are individually rare, they collectively impact millions of lives. In Europe, there is growing momentum for a comprehensive European Action Plan for Rare Diseases, supported by robust EU policy initiatives and concrete objectives. Various European nations are also progressing with their national strategies to tackle rare diseases. #health #rarediseaseawareness #raredisease #rarediseaseday #shareyourcolours #ActRare2024 Dragoslav Popovic Dina Štern Linda Franicevic Lisa A. Jones, GGAF CEO, PMHA Chrissy Sykes Adam Elman Andrej Bojic, M.A. Dr Muhammad Tahir Tabassum Prof. Antonio Imeneo -UniFUNVIC Brasil- Dario Ruggiero Jasmina Siderovski Santosh G
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Harsha K Rajasimha presented today at the Autoimmune Registry Webinar on "The urgent need for global registries for autoimmune rare diseases." Harsha K Rajasimha Indo US Organization for Rare Diseases (IndoUSrare) Nisha Venugopal Ramya T karur Reena Kartha #AutoimmuneRareDiseases #GlobalRegistries #indousrare #HealthcareResearch
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Today, the rarest of day of the year, we recognize #RareDiseaseDay. This day is dedicated to raising awareness for the 300 million people affected by rare diseases across the globe. We at The Evidence Base® are proud to support this area by covering the many ways in which real-world evidence and the insights this brings is contributing towards the research and development of new treatments and interventions for rare diseases. https://lnkd.in/ed55VczJ
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The 6th #Ramadan_IR_Bites episode is out!🌙with insights from the PAIRS' new IR CURRICULUM about 'THE ROLE OF IR IN PANCREATICO-BILIARY DISEASES" Join us as we explore the IR role in the management of many diseases during this Holy month🌟 #PAIRS_RFS
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Empowering Health, One Test at a Time! 🌟 At kwipdeals, we understand that timely disease detection is crucial for better healthcare. That's why we're proud to introduce our Dengue Combo Rapi-One Cards - a breakthrough in early Dengue diagnosis. With a combination of NS1 and IgG/IgM tests, these cards offer a comprehensive solution. Early detection means quicker treatment, reducing the severity of Dengue and potentially saving lives. Join us in the fight against Dengue. Learn more about our innovative healthcare solutions and how they're transforming the way we diagnose diseases. Together, we can make a healthier world. #DengueCombo #HealthcareInnovation #EarlyDiagnosis #WeborityCares
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Head of Business Unit Rare Diseases & Plasma Derived Therapies for Greece, Cyprus & Malta at Takeda 🇬🇷🇬🇧 🇭🇺 🇨🇾 🇲🇹
Here are some very important FACTS about RARE DISEASES ! Did you know that for the 95% of the Rare Diseases, currently there is no treatment and it can take more than 10 years to get an accurate diagnosis? Currently there are 300 million people worldwide affected by a rare Disease & 30 million people are estimated in Europe alone. Almost 500.000 people are affected in Greece ! It is time to act #raredisease #rarediseases #rarediseaseday #takeda #HealthEquity4Rare
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Chief Executive Officer at USA and International Research Inc.
1moWishing everyone at #ISTH2024 in Bangkok a productive and insightful conference! Looking forward to following along online as experts address the unmet needs in haemophilia and raise awareness of rare diseases. #ChangingHaemophilia"