Many people are diagnosed with sickle cell disease at birth or as a child, but Ashley Flowers lived the first 17 years of her life suffering from pain without an explanation.
“I like to explain it like a toothache,” Ashley said. “Toothaches are horrible to everyone — put that everywhere in your body, all your joints. My mom used to tell me I would tell her it feels like my bones hurt.”
When she became pregnant and went to her first obstetrics appointment, Ashley learned she had sickle cell disease. Test results revealed her hemoglobin level was significantly low, and she needed to go to the hospital to get a blood transfusion. Suddenly, the unexplainable pain she endured throughout childhood began to make sense.
“My biggest trigger as a kid was swimming,” Ashley said. “I used to love to swim. I think I still have a little bit of fear to this day of getting in the water because it would never fail. I would swim, I’d always fall asleep on the way home, and I’d wake up in horrible pain. Nobody knew what was happening. It would last a week to 10 days usually — I remember my legs would shake terribly when I sat down to use the bathroom. I could barely walk, and there were times I went to school like this.”
Ashley’s life changed after her diagnosis. Every three to six weeks, she’d find herself in the hospital experiencing another crisis and in need of blood. She's received over 200 units of blood since she was diagnosed 20 years ago.
Ashley was told she would not live to see 21, 25 or 30 — she recently turned 37 this year. She was also told she would never have children, but today, she’s a proud mom to three beautiful children.
Two of them have sickle cell disease. Their need for blood transfusions was the driving force behind her becoming a blood donor ambassador with the American Red Cross Greater New York two years ago.
“My son had his first transfusion at 5,” Ashley said. “It was a new level of scary. You watch your kid lay on this bed and they’re wiped completely out. There’s no energy, they can barely lift their head. To watch him receive blood, go to sleep, and wake up the next day and be the vibrant little boy that I know he is — it’s amazing to see and that showed me how important this is.
“If it wasn’t for people donating their blood and choosing to help save lives, so many things wouldn't be possible for me. I’m able to be a better and more present mother, a better and more present wife. I’m able to be there for my family and do the things I love. I was able to start my own business, which I never thought would ever happen for me.” #TeamUp4SickleCell