Genetic Alliance UK’s Post

View organization page for Genetic Alliance UK, graphic

2,707 followers

The newly formed #RareCare team are recruiting! Join the team as a Rare Care Research Advisory Group Lived Experience Member. Who can apply? - Are you a person or caregiver with lived experience of a rare condition? - Do you have experience in patient-centred research? - Have you taken part in a clinical trial or research study? Or supported someone who has? - Have you helped design or review research activities or healthcare services? - Have you been involved in Patient and Public Involvement, Engagement and Participation (PPIEP) activities? - Have you been part of a research advisory or service group? The newly formed #RareCare Team are recruiting 2 lived experience people to join their Research Advisory Group (RAG) for a 24-month NIHR (National Institute for Health and Care Research) funded project to measure the impact of England's #RareDiseases Action Plans for those living with rare conditions and to advise on improvement. This paid position involves 6-8 online meetings beginning in July 2024, and some reading and reviewing materials at home. 🔎 Learn about the RareCare project - https://ow.ly/uZff50SfiKy 🧾 View the role description - https://ow.ly/ayAN50SfiL0 ✔️ Apply to be considered for the role - https://ow.ly/43c650SfiLu Good luck

  • No alternative text description for this image

To view or add a comment, sign in

Explore topics